 | A Process of Grief: The Reality of Grieving a Child with Complex Health Care Needs
This article is about parenting a child who is medically fragile. |
| Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities
This paper is about end of life planning for people with intellectual or physical disabilities. The full report is available online. |
| Aging and Disability: Research and Clinical Perspectives
A text-book discussing many aspects of aging, about both people with disabilities who are aging and aging people who now have disabilities |
| Am I Going to Die? (From the "Books Beyond Words" series)
This book uses a story with drawings to explain what it is like to die slowly from an illness It is easy to understand and can be read together with a helper. |
| An Introduction to Pediatric Palliative Care
This article talks about end of life care for children with disabilities. |
| Bereavement, Loss and Learning Disabilities: A Guide for Professionals and Carers
This book is about the stages people with intellectual disabilities go through when someone dies. It also suggests ways to help. |
| Caring for People with Learning Disabilities who are Dying
This book is about taking care of people with learning disabilities who are dying. |
| Conflicting Beliefs (Case Study)
This case study addresses ethical issues surrounding end-of-life care for people with disabilities. It is available online and can be used to train health care providers. |
| Contemporary and Innovative Practice in Palliative Care
This book is about end-of-life care. You can download it online for free and it has a chapter devoted to older adults with intellectual disabilities. |
| End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities
A book written to help professionals and families with end-of-life care decisions for people with intellectual and developmental disabilities. |
| End-of-life Care: Bridging Disability And Aging With Person Centered Care
A book about end of life care both for people with disabilities and people who are aging. It has real life examples and chapters that are responses to these papers from experts in the field. |
| Estate Planning for People with a Chronic Condition or Disability
This book is about estate planning for people with disabilities or chronic illness. |
| Finding Your Own Way to Grieve A Creative Activity Workbook for Kids and Teens on the Autism Spectrum
This book offers help for dealing with grief. It has many activities and is directed towards children and youth on the Autism spectrum. |
| Five Wishes
Five Wishes is a booklet where you put in writing how you want things handled for you at the end of life. |
| Guidebook on helping persons with mental retardation mourn.
The book for supporting loss, including death, job or residential change, and other situations that cause bad feelings.
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| Helping People with Developmental Disabilities Mourn: Practical Rituals for Caregivers
This is a book for caregivers to help people with disabilities mourn the death of a loved one. |
| How to Break Bad News to People with Intellectual Disabilities A Guide for Carers and Professionals
This book explains how to share difficult news with people who may have difficulty understanding. There is also a website that shares a lot of information from the book. |
| Individuals with Intellectual Disabilities: Struggling with Loss and Grief
This is a scholarly paper about how people with intellectual disabilities respond when someone close to them dies. It also has lots of ideas about how to help. |
| Learning Disabilities and Bereavement
This article has suggestions about how to help people with disabilities go through the grieving process. |
| Lessons in Grief and Death: Supporting People with Developmental Disabilities in the Healing Process
A book for helping people with disabilities cope with the loss of someone in their life. |
| Letting Ruth Go
This is a story written by a mother. It tells about the challenges her family had in adopting a child with disabilities, the hard work and joy as her daughter grew given love and therapy, and the grief they all felt when the child died suddenly. |
| Living and Dying With Dignity: The Best Practice Guide to End-of-Life Care for People With a Learning Disability
This guide is about end-of-life care for people with learning disabilities. |
| Living with Learning Disabilities, Dying with Cancer Thirteen Personal Stories
This book tells the stories of people with disabilities who are dying of cancer. |
| People Planning Ahead: Communicating Healthcare and End-of-Life Wishes
This workbook helps caregivers support someone through end of life issues. |
| Person Centered Planning and Communication of End-Of-Life Wishes With People Who Have Developmental Disabilities
This paper is about using person-centered planning with people who have disabilities and are nearing the end of their lives. It is available online. |
| Person Centered Planning for Later Life: Death and Dying - A curriculum for Adults with Mental Retardation
This training curriculum helps people with mental disabilities understand death and grieving. It includes six lessons lead by a facilitator and a student notebook. Pictures and interactive options, such as field trips to a funeral home, are included. |
| Persons with Intellectual Disabilities: Facing Dying and Loss
This chapter is included in a book about how culture affects end-of-life care. |
| Quality in Practice: End of Life Issues
A resource guide that gives suggestions on how organizations can promote and maintain community participation for people with disabilities in later life and provide end-of-life support |
| Ron's Feeling Blue (From the "Books Beyond Words" series)
This book uses a story with drawings to explain what it is like to experience depression. It is easy to understand and can be read together with a helper. |
| Supporting Adults with Intellectual Disability Through Bereavement and the Grief Process
This is a PowerPoint presentation about the grieving process. |
| Supporting People with Disabilities Coping with Grief and Loss
This book is about helping people with disabilities deal with grief and loss. |
| The Route to Success in End of Life Care - Achieving Quality for People with Learning Disabilities
This guide is about end of life care and people who have intellectual disabilities. |
| Thinking Ahead: My Life at the End
This booklet and video help people with disabilities talk about advance care planning and express their wishes for end of life care. Both are available online for free. |
| Thinking Ahead: My Way, My Choice, My Life at the End
A workbook to assist people in making decisions about the end of their life. There are also three videos about the guide you can watch online. |
| Understanding Death and Illness and What They Teach About Life: An Interactive Guide for Individuals with Autism or Asperger's and their Loved Ones
A book to help people with autism with questions they may have after the death of a loved one. |
| What Should We Do for Jay? The Edges of Life and Cognitive Disability
This article asks how and on what grounds you should make end-of-life-decisions for a person with intellectual disability. |
| When Dad Died, 3rd Edition (From the "Books Beyond Words" series)
This book uses a story with drawings to explain what it is like to have a parent die. It is easy to understand and can be read together with a helper |
| When Mum Died, 3rd Edition (From the "Books Beyond Words" series)
This book uses a story with drawings to explain what it is like to have a parent die. It is easy to understand and can be read together with a helper |
| When Somebody Dies (From the "Books Beyond Words" series)
This book uses a story with drawings to explain what it is like to have a close friend die. It is easy to understand and can be read together with a helper. |
