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New Parents
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Contains products especially for families who are new to the issues and concerns of having a family member with a developmental disability.

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Product Categories
Books, Publications & Reports (printed and/or online) (73 Products)
Electronic Media (34 Products)
Organizations, Programs, and Projects (16 Products)
Other (1 Products)

Books, Publications & Reports (printed and/or online)
1001 Great Ideas for Teaching and Raising Children with Autism or Asperger's - Expanded 2nd Edition
This book has many practical ideas to help children with Autism or Asperger's.
101 Tips for the Parents of Boys with Autism The Most Crucial Things You need to Know About
This book has tips to help parents with an adolescent boy who has autism.
A "Stranger" Among Us
A comprehensive guide to all aspects of hiring one-to-one support for children and young adults with disabilities. Uses examples, checklists, and sample questions in a reader-friendly format. “Stranger” covers a complex topic with sensitivity.
A Beginner's Guide to Autism Spectrum Disorders Essential Information for Parents and Professionals
This short book helps parents and others learn more about children with autism.
A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny
A mom wrote this book about the first two years of her daughter's life. Her daughter was born with Down syndrome.
A Parenting Guide for Families of Children with Disabilities: Developing Social Skills Towards Independent Living
This book helps families decide how to raise their child with a disability. It is easy to follow
A Parent's Guide to Down Syndrome Toward a Brighter Future, Revised Edition
A book for new parents who have a child with Down syndrome. It covers information to help improve the child's quality of life.
A Promising Future Together A Guide for New and Expectant Parents
This booklet is about Down Syndrome.
A Spectrum of Light Inspirational Interviews with Families Affected by Autism
This book shares the stories of families that include a child with autism.
AFTER DIAGNOSIS “……what happens now?” A guide for parents whose child has just been diagnosed with an Autistic Spectrum Disorder
This fact sheet helps parents know what to do when their child has been diagnosed on the Autism Spectrum. It is written in Great Britain.
After the Diagnosis of an Autism Spectrum Disorder: A Resource for Families Whose Child is Newly Diagnosed
This publication is designed to provide Indiana families a place to start to navigate systems after their child receives an autism spectrum disorder diagnosis. You can download it as a PDF.
Alex the Boy: Episodes from a family's life with autism
A book written by the father of a boy who was born premature and has autism. He talks about how their family handles issues such as eating, sleeping, school, and public behavior.
Alex: The Fathering of a Preemie
This book tells the story of a 21-ounce special-needs preemie's first five years of life. It is written by the father.
Alphabet Kids - From ADD to Zellweger Syndrome A Guide to Developmental, Neurobiological and Psychological Disorders for Parents and Professionals 2nd edition
This book explains 70 different disability labels sometimes given to children.
Aspergers from the Inside Out: A Supportive and Practical Guide for Anyone with Asperger's Syndrome
This book is written by a man with Asperger Syndrome who wasn't diagnosed until he was thirty six years old. His diagnosis came when his son was also found to be affected by the disorder.
Autism & Alleluias
A book written by the mother of young adult with Autism. She uses the stories gathered over many years to explain what her life has been like. The author also explains how Christianity helped her.
Autism Every Day: Over 150 Strategies Lived and Learned by an Autism Consultant and Mom
This book explains the joys and challenges of parenting a child who has autism.
Autism in the Family Caring and Coping Together
This book is about parenting a child with autism.
Autism Spectrum Disorders from A to Z: Assessment, Diagnosis, and More
This book is a resource guide for symptoms, definitions, assessments and diagnoses of the variety of autism spectrum disorders. It has information for parents and professionals, and is also available in Spanish.
Babies with Down Syndrome: A New Parents' Guide (3rd Edition)
This is a book for new parents who have a child with Down syndrome. It covers the best practices for raising and caring for their child.
Becoming a Resilient Family: Child Disability and the Family System
This article gives ideas to help families grow closer and stronger when they find out their child has a disability.
Benefits For Children With Disabilities
This booklet tells how children and youth can make use of SSI and SSDI benefits. It is written to parents and updated every year. You can download a copy for free as a PDF file.
Beyond The Silence: My life, the World and Autism
This book is an autobiographical narration of a young poet who has autism and it includes a collection of his selected poems with a foreword by Lorna Wing
A magazine and blog on parenting children with disabilities.
Building a Joyful Life with your Child who has Special Needs
A book for parents about staying healthy and strong while raising a child who has special needs.
Cerebral Palsy Information, Advice and Support for Parents During the Early Years
This booklet is about children who have cerebral palsy. It is available online.
Children with Tourette Syndrome: A Parents' Guide, Second Edition
This book provides information to the parents of children and teens with Tourette Syndrome.
Choosing Naia: A Family's Journey
This is the story of a family who decides to give birth to a child who was pre-natally diagnosed with Down Syndrome, despite the challenges that they knew the conditions of the baby will pose.
Coping Strategies For Parents Who Have Children With Disabilities
This article shares advice for parents of newly-diagnosed children and youth. You can read it online.
Defiant Birth: Women Who Resist Medical Eugenics
This book tells the stories of women who were told not to have their babies. They were told that because of perceived disabilities in themselves or their unborn children.
Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities (Third Edition)
This book offers advice and insight into living with a disability, and being the parent of a child with a disability. It is based on the paradigm that disability is natural, rather than somehow different from "normal."
Doctors Urged To Offer Options, Avoid ‘I’m Sorry’ When Delivering a Diagnosis
This article talks about the best ways to notify families when their baby may have disabilities.
Down Syndrome Parenting 101 Must–Have Advice for Making Your Life Easier
This book is written for parents of a child with Down Syndrome. It covers the life span, except for the issues of elders.
Dr. Thompson's Straight Talk on Autism
This book has practical advice about supporting children who have autism.
Early Intervention and Autism: Real-Life Questions, Real-Life Answers
This book is about young children who have autism. It is written to parents.
Emergence labeled autistic
This is the true story of Temple Grandin, a woman with autism, told in her words.
Expecting Adam, A True Story of Birth, Rebirth, and Everyday Magic
An autobiographical tale of a Harvard couple who conceive a baby with Down's syndrome and decide to carry him to term.
Expecting an Extraordinary Life: A New Parent’s Guide to Down Syndrome
This booklet is for new parents of a child with Down syndrome. You can download a copy for free as a PDF file.
Families, Infants, and Young Children at Risk: Pathways to Best Practice
This academic book is about helping infants, preschool age children, up to age 8, grow to be healthy.
Family Information Guide to Assistive Technology and Transition Planning
A guide for families that focuses on the role of assistive technology during transition times in a child's life. You can download it as a PDF file.
Family Information Notebook (FIN)
A notebook for parents who have a child with a disability. It has information and forms to help coordinate aspects of the child's care and health.
Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives - Tenth Anniversary Edition
This book is a collection of stories written by mothers who have children with Down Syndrome.
Gravity Pulls You In: Perspectives on Parenting Children on the Autism Spectrum
This book shares the experience of parenting children with autism. It does this by sharing 33 real life stories
How to Detect Developmental Delay and What to Do Next
This book helps new parents who suspect their baby has a disability.
Impact: Feature Issue on Early Childhood Education and Children with Disabilities
This issue of the Impact newsletter is about providing quality and inclusive education for young children with and without disabilities. You can download a copy for free.
Information on Birth Defects and Other Health Conditions
The March of Dimes has separate webpages that explain many developmental disabilities on its website.
Intellectual Disability: A Guide For Families And Professionals
This book explains many things about intellectual disabilities.
Life Landscapes: Parents talk about raising children with disabilities
This book has many stories written by parents across a range of ages, cultures, geographic locations in the province of Saskatchewan. There are also photographs of the families.
Making Sense of Autistic Spectrum Disorders: Create the Brightest Future for Your Child with the Best Treatment Options
This book explains autism, it is written for parents.
Married with Special-Needs Children A Couples' Guide to Keeping Connected
This book is written for couples who have a child with special needs. It offers ideas on keeping a strong relationship through many challenges.
More Than a Mom: Living a Full and Balanced Life When Your Child has Special Needs
A book which explores how women can lead rich, fulfilling personal lives while parenting a child with special needs.
Moving Ahead with Food: Matching Oral Motor Skills and food Textures
This tool guides parents in introducing new foods.
My Andrew: Day-to-Day Living with a Child with an Autism Spectrum Disorder
This book helps teachers, therapists, doctors and family members better understand a child with Autism.
Optimistic Parenting: Hope and Help for You and Your Challenging Child
This book will help the parents of children with challenging behaviors and special needs learn how to best support them, and improve family harmony.
Raising Roby
This is a self-published book written by the mom of an adult who has Down Syndrome. It shows both the challenges and wonders of raising a child with disabilities.
Revolutionary Common Sense—153 Reproducible Articles: How You Can Create Positive Change for People with Disabilities
This book contains articles about advocating for, as well as working with people who have disabilities. It is written by the parent of a son with a disability.
Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome
A book about a mother's experience raising a child with Down syndrome.
Schuyler's Monster: A Father's Journey with His Wordless Daughter
This book is written by a father about his experiences with his daughter Schuyler and her disability.
Son Rise
This book and movie tells the true story of the first 30 months of life of Raun who has autism.
Son Rise: The Miracle Continues
This book tells the story of a boy with autism and how his family supported him.
The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
This book was written by the father of a boy with intellectual and physical disabilities.
The First Year: Autism Spectrum Disorders: An Essential Guide for Your Newly Diagnosed Child
This book gives helpful information to parents whose child is newly diagnosed with autism.
The Unplanned Journey: When You Learn That Your Child Has a Disability
This web-based article has ideas to support parents after learning that their child has a disability. Many of the ideas focus on helping the entire family.
Understanding Cerebral Palsy A Guide for Parents and Professionals 1st edition
This book explains cerebral palsy, and the support needs of people who have it.
Understanding Fragile X Syndrome A Guide for Families and Professionals
This book explains Fragile X Syndrome in both a scientific and practical way. It has ideas to help families.
Unlocked, A Family Emerging from the Shadows of Autism
This book is about a mother and her son, who has autism. It shows how autism can affect parents and families.
We Dance Together: A Painted Essay about My Education with Katie
This book was done by the mom of a woman with Down syndrome. It uses watercolor paintings and a few words to tell their story.
We'll Paint the Octopus Red
In this book a little girl finds out that she will still be able to do a lot of things with her new baby brother, born with down syndrome.
What I Wish I'd Known about Raising a Child with Autism: The First 5 Years
This book is coauthored by a mother and a psychologist.
When Your Child Has a Disability: The Complete Sourcebook of Daily & Medical Care, Revised Edition
This book explains medical and other issues for children who have various disabilities. It has information on causes and describes daily and medical care for each type of disability.
X Stories: The Personal Side of fragile X syndrome
This book has writings from the families and caregivers of people with fragile X syndrome.
You And Your Disabled Child - a practical guide for parents
A practical guide written for parents who have recently been told that their child has, or is likely to have, a disability or developmental delay. It aims to help them cope on a day-to-day basis and gives ideas for encouraging the child's development.
You Are Not Alone: For Parents When They Learn That Their Child Has A Disability
This seminal article has advice for new parents.
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
"Informing Families" website
This website has information for parents who have just learned their baby may have disabilities.
This film is about the challenges that families face when they provide care in the home for their loved ones who have developmental disabilities.
This website has a lot of information for supporting the healthy development of children with disabilities.
Beautiful Son
This documentary is about one family's struggle to heal their son from autism.
Beyond Our Boundaries Virtual Tours
These DVDs present opportunities to see other places for people not able to travel.
A magazine and blog on parenting children with disabilities.
A short film about Jayden, a two and half year old diagnosed with autism. The film follows Jayden through his first months of school in the Bronx.
Caregiver Guide to Special Needs
This web-based guide has questions and answers about what it's like to care for children with special needs. It is written mostly to parents.
Children with a disability - Parent Easy Guide
This webpage has advice for new parents of children with disabilities. It is one of many provided by the South Australian Department of Education and Child Development.
Children With Autism
This DVD and viewer's guide explains autism for parents and foster parents. It also has information about developmental delay, Functional Behavior Assessment, Asperger syndrome, and medical issues.
Children's Disabilities Information
This website has many articles to help parents. Its tagline is "Essential articles and resources empower parents of children with disabilities and special needs."
Complex Child E-Magazine
This is an online magazine with articles written by parents. It has articles on many medical topics, and there is a new issue every month.
Difficult Families?
This short YouTube video shows three different Moms talking about what it means to be "difficult familiy."
Down Syndrome: The First 18 Months
This DVD shows the first 18 months of life for a baby who has Down Syndrome. It was made by his father.
Down Wit Dat
This is a web-based community for parents of children with Down Syndrome. It began as a blog written by a mom, and now includes a Facebook page, a Facebook discussion group, as well as a Twitter account.
Emma's Gifts
This film is about Emma who was born with Down Syndrome, which makes her different from her twin sister, Abigale. Emma's story is told through the eyes of her parents. You can purchase a DVD copy.
Fathers' Voices
This film profiles four men who are raising children with developmental disabilities.
From Puddles to Pride
This animated slideshow shares a mother’s poem about her son, his disability, and her family’s transformation.
Infants and Disabilities: A Baby on Board Case Study DVD
This DVD offers information to parents who have a child born with Down Syndrome.
Informing Families: Today and Tomorrow
This website has information on the developmental tasks of people with disabilities at six stages in life. It also explains the resources available to help.
Love that Max: A Special Needs Blog
A blog from a parent who has a son with cerebral palsy. She posts about her parenting experiences and provides useful information for other parents who have children with disabilities.
My Child Without Limits
This website has a lot of good information for parents. It explains many developmental disabilities, and the services and supports that are available to help. Finally, it offers many action steps for parents.
National Down Syndrome Congress website
Includes a nice section with information for both new and expectant parents.
National Fragile X Foundation
This is an organization for people interested in Fragile X syndrome.
Our-Kids Listservs
This website helps build connections between the families of children and adults with disabilities
This is a method to assess vision for those who have difficulty with eye exams, such as children with autism.
Raising Children Network: The Australian Parenting Website
This website gives advice on being a parent. There is information about being the parent of a child with disabilities. There is also information for and about parents who have disabilities.
Real Look Autism
This website uses real life stories from families who have a child with Autism. It has videos that show parents and therapists working together to help a child. There are also articles about ways to help children with Autism.
Roll On
This DVD has stories about children who have physical disabilities. They are told by parents and the kids themselves.
S.M.I.L.E. on Down Syndrome Parent Network
An organization in Indiana that provides information and support to the families of children who have Down syndrome. S.M.I.L.E. also serves small parts of Kentucky and Illinois.
Son Rise
This book and movie tells the true story of the first 30 months of life of Raun who has autism.
Successful Bridges: Growing Up With Spina Bifida DVD
This DVD explains Spina Bifida through typical life transitions.
The Children's Link
The Children's Link is a website with a lot of information for families who have a special needs child or adult. It focuses on resources available in Calgary, Alberta.
When Parents Can't Fix It: Living With a Child's Disability
This film looks at the lives of five families who have children with disabilities. It shows the problems they face, and the rewards and stresses of adapting to their child's condition.
Organizations, Programs, and Projects
Autism Society of Minnesota
This organization provides social skills classes, therapists, trainings, education, and resources to Minnesotans on the spectrum and their families.
Beyond Our Boundaries Virtual Tours
These DVDs present opportunities to see other places for people not able to travel.
Center for Disability Information and Referral
This Center is a primary source of quality information on disability for residents of Indiana.
Down Syndrome Alliance of the Midlands (DSA)
This agency improves the lives of individuals and families who are touched by Down syndrome through providing educational workshops and family-based leisure opportunities.
Families United Network
This program offers peer support and information over the phone to parents, siblings, or other caregivers. It is free and volunteer-based.
Family Support Advisory Council
A Louisiana group that keeps a watchful eye on the delivery of community and family supports.
Kids Together, Inc.
Kids Together, Inc. is a 501(c)3 non-profit dedicated to the inclusion of children and adults with disabilities. They have a valuable newsletter/listserv with information for parents and self-advocates.
Learn the Signs. Act Early.
This initiative helps parents, doctors, and everyone notice signs of disability in babies and very young children.
National Association for Down Syndrome
This organization advocates for and supports individuals with Down syndrome and their families living in the Chicago, Illinois area.
National Dissemination Center for Children with Disabilities
This online database has lots of information for families of children with disabilities through 2013 when its funding ended. The archived information is still available online and is even being updated.
National Fragile X Foundation
This is an organization for people interested in Fragile X syndrome.
Parent to Parent -- A National Network of Parent Support Programs
Parent to Parent programs provide information and support to parents/caregivers of family members with disabilities.
S.M.I.L.E. on Down Syndrome Parent Network
An organization in Indiana that provides information and support to the families of children who have Down syndrome. S.M.I.L.E. also serves small parts of Kentucky and Illinois.
Technical Assistance Alliance for Parent Centers
This organization provides information and support to all of the Parent Training and Information Centers in the United States
The Vanderbilt Treatment and Autism Research Institute for Autism Spectrum Disorders (TRIAD)
This University-based center studies the needs of children who have autism spectrum disorder. It provides some services and is located in Tennessee.
Washington State Fathers Network
This organization is run by and for fathers of kids and adults who have disabilities. It offers dads information, mutual support, and social opportunities.
Pip Squeakers Baby Squeaky Shoes
Baby squeaky shoes that alert parents and encourages first steps.

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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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