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New Parents
  >>Located in Store(s): Family Place

Contains products especially for families who are new to the issues and concerns of having a family member with a developmental disability.

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Managed by: Carol Ely of Institute on Community Integration, University of Minnesota

Product Categories
Books, Publications & Reports (printed and/or online) (67 Products)
Electronic Media (44 Products)
Organizations, Programs, and Projects (16 Products)
Online Forums (2 Products)
Other (2 Products)
People Who Can Help (1 Products)


Books, Publications & Reports (printed and/or online)
1001 Great Ideas for Teaching and Raising Children with Autism or Asperger's - Expanded 2nd Edition
This book has many ideas on how to help children with Autism or Asperger's.
A "Stranger" Among Us
A comprehensive guide to all aspects of hiring one-to-one support for children and young adults with disabilities. Uses examples, checklists, and sample questions in a reader-friendly format. “Stranger” covers a complex topic with sensitivity.
A Beginner's Guide to Autism Spectrum Disorders Essential Information for Parents and Professionals
This book is about autism.
A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny
A mom wrote this book about the first years of her daughter's life. Her daughter was born with Down syndrome.
A Parenting Guide for Families of Children with Disabilities: Developing Social Skills Towards Independent Living
This book helps families decide how to raise their child with a disability. It is easy to follow
A Parent's Guide to Down Syndrome Toward a Brighter Future, Revised Edition
A book for new parents who have a child with Down syndrome. It covers information to help improve the child's quality of life.
A Promising Future Together A Guide for New and Expectant Parents
This booklet is about Down Syndrome.
A Spectrum of Light Inspirational Interviews with Families Affected by Autism
This book shares the stories of families that include a child with autism.
A Very Special Baby Book
A baby book for babies born with special needs.
AFTER DIAGNOSIS “……what happens now?” A guide for parents whose child has just been diagnosed with an Autistic Spectrum Disorder
This fact sheet helps parents know what to do when their child has been diagnosed on the Autism Spectrum. It is written in Great Britain.
Alex the Boy: Episodes from a family's life with autism
A book written by the father of a boy who was born premature and has autism. He talks about how their family handles issues such as eating, sleeping, school, and public behavior.
Alex: The Fathering of a Preemie
A 21-ounce special-needs preemie's first five years of life, written by the father.
Alphabet Kids - From ADD to Zellweger Syndrome A Guide to Developmental, Neurobiological and Psychological Disorders for Parents and Professionals 2nd edition
This book explains 70 different disability labels sometimes given to children.
Autism & Alleluias
A book written by the mother of young adult with Autism. She uses the stories gathered over many years to explain what her life has been like. The author also explains how Christianity helped her.
Autism Every Day: Over 150 Strategies Lived and Learned by an Autism Consultant and Mom
This book explains the joys and challenges of parenting a child who has autism.
Autism in the Family Caring and Coping Together
This book is about parenting a child with autism.
Babies with Down Syndrome: A New Parents' Guide (3rd Edition)
This is a book for new parents who have a child with Down Syndrome. It covers the best practices for raising and caring for a child with Down Syndrome.
Becoming a Resilient Family: Child Disability and the Family System
This article gives ideas to help families grow closer and stronger when they find out their child has a disability.
Benefits For Children With Disabilities
This booklet tells how children and youth can make use of SSI and SSDI benefits. It is written to parents and updated every year. You can download a copy for free as a PDF file.
Building a Joyful Life with your Child who has Special Needs
A book for parents about staying healthy and strong while raising a child who has special needs.
Changed by a Child
This book describes the inner needs and range of issues that parents with children with disabities face.
Children with a Disability - Support for Parents
This fact sheet tells how to help parents of a child with a disability. It is from the Better Health Channel website of the State of Victoria, Australia.
Children with Tourette Syndrome: A Parents' Guide, Second Edition
This book provides information to the parents of children and teens with Tourette Syndrome.
Choosing Naia: A Family's Journey
This is the story of a family who decides to give birth to a child who was pre-natally diagnosed with Down Syndrome, despite the challenges that they knew the conditions of the baby will pose.
Down Syndrome
This is a fact sheet about the health needs of people who have Down Syndrome. It covers issues across the lifespan.
Down Syndrome Parenting 101 Must–Have Advice for Making Your Life Easier
This book is written for new parents of a child with Down Syndrome.
Dr. Thompson's Straight Talk on Autism
A book with advice about supporting children who have autism.
Early Intervention and Autism: Real-Life Questions, Real-Life Answers
This book is about young children who have autism. It is written to parents.
Emergence labeled autistic
This is the true story of Temple Grandin, a woman with autism, told in her words.
Expecting an Extraordinary Life: A New Parent’s Guide to Down Syndrome
This booklet is for new parents of a child with Down Syndrome.
Families, Infants, and Young Children at Risk: Pathways to Best Practice
A textbook about helping infants, preschool age children, up to age 8, grow to be healthy.
Family Information Guide to Assistive Technology and Transition Planning
A guide for families that focuses on the role of assistive technology during transition times in a child's life.
Family Information Notebook (FIN)
A notebook for parents who have a child with a disability. It has information and forms to help coordinate aspects of the child's care and health.
Family Quality of Life Survey
This is a survey that addresses family quality of life and helps families or family support personnel identifiy family strengths and priorities for support.
From Stumbling Blocks to Stepping Stones: Help and hope for special needs kids
Shari tells her story about growing up with disabilities. She also offers great advice for people with disabilities and families. Shari is a certified teacher and has a child with a disability.
Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives
This book is a collection of stories written by mothers who have children with Down Syndrome.
Gravity Pulls You In Perspectives on Parenting Children on the Autism Spectrum
This book is about the experience of parenting children with autism.
How to Detect Developmental Delay and What to Do Next
This book helps new parents who suspect their baby has a disability.
Impact: Feature Issue on Early Childhood Education and Children with Disabilities
This issue of the Impact newsletter is about providing quality and inclusive education for young children with and without disabilities.
Intellectual Disability : A Guide For Families And Professionals
This book explains many things about intellectual disabilities.
Life Landscapes: Parents talk about raising children with disabilities
This is the first in the Life Landscapes series; this installment features stories written by parents and photographs of families across a range of ages, cultures, geographic locations in the province of Saskatchwean, and disability.
Making Sense of Autistic Spectrum Disorders: Create the Brightest Future for Your Child with the Best Treatment Options
This book explains autism, it is written for parents.
Married with Special-Needs Children A Couples' Guide to Keeping Connected
This book is written for couples who have a child with special needs. It offers ideas on keeping a strong relationship through many challenges.
More Than a Mom: Living a Full and Balanced Life When Your Child has Special Needs
A book which explores how women can lead rich, fulfilling personal lives while parenting a child with special needs.
Moving Ahead with Food: Matching Oral Motor Skills and food Textures
This tool guides parents in introducing new foods.
New Vision:Training Parents as Early Intervention Coordinators
A curiculum designed to train parents of children with disabilities to become early intervention coordinators.
Optimistic Parenting :Hope and Help for You and Your Challenging Child
This book will help the parents of children with challenging behaviors and special needs learn how to best support them, and improve family harmony.
SAFE BEGINNINGS: Protecting Our Children from Sexual Abuse
Safe Beginnings is a book for parents, child care providers and anyone who cares about preschool children and the prevention of sexual abuse.
Schuyler's Monster: A Father's Journey with His Wordless Daughter
A book by Robert Rummel-Hudson about his experiences with his daughter Schuyler and her disability.
Son Rise
This book tells the true story of the first 30 months of life of Raun who has autism.
Son Rise: The Miracle Continues
Story about a boy with autism and how his family supported him.
Special Education: A Parent's Guide to a Child's Success
This book presents the complexities of the special education experience in a simple-to-understand way and offers practical tips, checklists and strategies on how to make the system work to insure the educational success of all children.
Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality
A book for parents of children with Down syndrome to guide them when teaching their child about sexuality.
The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
A book written by a father of a boy with disabilities.
The First Year : Autism Spectrum Disorders: An Essential Guide for Your Newly Diagnosed Child
This book gives helpful information to parents whose child is newly diagnosed with autism.
The Impact of Childhood Disability on Parents
This fact sheet provides some idea of parents' reactions when they find out their child has a disability.
The Power of the Powerless
De Vinck's true account of the life of his brother with severe handicaps. It is a powerful, inspirational statement on the value of life.
Understanding Cerebral Palsy A Guide for Parents and Professionals 1st edition
This book explains cerebral palsy, and the support needs of people who have it.
Understanding Fragile X Syndrome A Guide for Families and Professionals
This book is about Fragile X Syndrome.
Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs
A book of stories written by children who have a brother or sister who has disabilities. The book also contains easy to understand descriptions of many disabilities, such as cerebral palsy, and spina bifida.
We Dance Together: A Painted Essay about My Education with Katie
A book about the story of the author’s education with her daughter Katie. The journey begins when Basford is told that her daughter has a disability and it continues for the next twenty-six years.
We'll Paint the Octopus Red
In this book a little girl finds out that she will still be able to do a lot of things with her new baby brother, born with down syndrome.
What About Me? Growing Up with a Developmentally Disabled Sibling
A compassionate and accessible guide on living with and caring for a sibling with developmental disabilities.
What I Wish I'd Known about Raising a Child with Autism: The First 5 Years
This book is coauthored by a mother and a psychologist.
When Your Child Has a Disability: The Complete Sourcebook of Daily & Medical Care, Revised Edition
This product is a book that covers medical and other issues for children who have various disabilities. It has information on causes and describes daily and medical care for each type of disability.
X Stories: The Personal Side of fragile X syndrome
This book has writings from the families and caregivers of people with fragile X syndrome.
You And Your Disabled Child - a practical guide for parents
A practical guide written for parents who have recently been told that their child has, or is likely to have, a disability or developmental delay. It aims to help them cope on a day-to-day basis and gives ideas for encouraging the child's development.
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
"Informing Families" website
This website has information for parents who have just learned their baby may have disabilities.
24/7
This film is about the challenges that families face when they provide care in the home for their loved ones who have developmental disabilities.
A Very Special Baby Book
A baby book for babies born with special needs.
AbilityPath.org
A website that has a lot of information for supporting the healthy development of children with disabilities.
Beautiful Son
A documentary about one family's struggle to heal their son from autism.
Bye
A short film about Jayden, a two and half year old diagnosed with autism. The film follows Jayden through his first months of school in the Bronx.
Caregiver Guide to Special Needs
A guide for caregivers that provides information and advice about common disorders and conditions.
Cerebral Palsy Information, Advice and Support for Parents During the Early Years
This online booklet is about children who have cerebral palsy.
Children of the Stars
This is a film about children with autism who live in China.
Children With Autism
A DVD for parents and foster parents about autism. Also included is information about develomental delay, Functional Behavior Assessment, Asperger syndrome, and medical issues.
Children's Disabilities Information: Essential articles and resources empower parents of children with disabilities and special needs.
A web site for families. It has many different types of information for parents of children with special needs or disabilities.
Complex Child E-Magazine
This is an online magazine with articles written by parents. It has articles on many medical topics, and there is a new issue every month.
Coping Strategies For Parents Who Have Children With Disabilities
This online article shares advice for parents of newly-diagnosed children and youth.
Doctors Urged To Offer Options, Avoid ‘I’m Sorry’ When Delivering a Diagnosis
This article from an online newsletter says that mothers don't want to be surprised when their baby is diagnosed with Down Syndrome before birth. They want a prearranged phone call, not a surprise one.
Down Syndrome: For New Parents
This web site is for new parents of children with Down Syndrome.
Down Syndrome: The First 18 Months DVD
This DVD shows the first 18 months of life for a baby who has Down Syndrome. It was made by his father.
DownSyndrome.com
This website gives parents who have a child with Down syndrome and others a place to share thoughts and make friends.
Emma's Gifts
A film about Emma who was born with Down Syndrome, which makes her different from her twin sister, Abigale. Emma's story is told through the eyes of her parents.
Expecting an Extraordinary Life: A New Parent’s Guide to Down Syndrome
This booklet is for new parents of a child with Down Syndrome.
Family Information Guide to Assistive Technology and Transition Planning
A guide for families that focuses on the role of assistive technology during transition times in a child's life.
Family Life Cycle Families of Individuals with Developmental Disabilities
This PowerPoint presentation talks about the stages that families go through with a family member who has disabilities.
Fathers' Voices (Film)
A film about men raising children with developmental disabilities.
I Love Somebody: Safety in the Home {part of a set)
This DVD teaches parents with disabilities how to make their home safe for children.
Impact: Feature Issue on Early Childhood Education and Children with Disabilities
This issue of the Impact newsletter is about providing quality and inclusive education for young children with and without disabilities.
Infants and Disabilities: A Baby on Board Case Study DVD
This DVD offers information to parents who have a child born with Down Syndrome.
Kids Together, Inc.
Kids Together, Inc. is a 501(c)3 non-profit dedicated to the inclusion of children and adults with disabilities. They have a valuable newsletter/listserv with information for parents and self-advocates.
Learn the Signs. Act Early.
This initiative helps parents, doctors, and everyone notice signs of disability in babies and very young children.
March of Dimes disability fact sheets
The March of Dimes has separate fact sheets about many developmental dissabilities on its website.
Moving Ahead with Food: Matching Oral Motor Skills and food Textures
This tool guides parents in introducing new foods.
National Down Syndrome Congress website
Includes a nice section with information for both new and expectant parents.
National Fragile X Foundation
This is an organization for people interested in Fragile X syndrome.
Our-Kids Listserv
An essential e-mail list for families of children with disabilities
Parenting and Child Health website - South Australia Department of Child, Youth, and Women Health Service
This web site has information about the health and development of children. There are many pages about the needs of children with disabilities.
PediaVision
A new way to assess vision for those who have difficulty with eye exams, such as children with autism.
Raising Children Network: The Australian Parenting Website
This website gives advice on being a parent. There is information about being the parent of a child with disabilities. There is also information for and about parents who have disabilities.
Real Look Autism
This website uses real life stories from families who have a child with Autism. It has videos that show parents and therapists working together to help a child. There are also articles about ways to help children with Autism.
Roll On DVD
This DVD has stories about children who have disabilities. They are told by parents and the kids themselves.
S.M.I.L.E. on Down Syndrome Parent Network
An organization in Indiana that provides information and support to the families of children who have Down syndrome. S.M.I.L.E. also serves small parts of Kentucky and Illinois.
Successful Bridges: Growing Up With Spina Bifida DVD
This DVD explains Spina Bifida through typical life transitions.
The Children's Link
The Children's Link provides individual guidance and information to families who have a special needs child.
The Fathers Network
A website that provides current information and resources to assist all families and care providers involved in the lives of children with special needs, especially fathers.
The Unplanned Journey: When You Learn That Your Child Has a Disability
This is a web article that talks about some of the feelings parents have after finding out that their child has a disability.
Toilet Training for Children with Special Needs
This DVD provides practical techniques and core principles for successful toilet training for children with special needs.
When Parents Can't Fix It: Living With a Child's Disability
This moving and and important film looks at the lives of five families who are raising children with disabilities- the problems they face, and the rewards and stresses of adapting to their child's condition.
Organizations, Programs, and Projects
Australian Family and Disability Studies Research Collaboration Faculty of Health Sciences
This program and their web site has lots of information about disability and family issues. There is information about children and adults, becoming parents, and much more.
Down Syndrome Alliance of the Midlands (DSA)
An organization in Ohmaha, Nebraska. They seek to improve the lives of individuals and families who are touched by Down syndrome.
Expecting an Extraordinary Life: A New Parent’s Guide to Down Syndrome
This booklet is for new parents of a child with Down Syndrome.
Families United Network
This program offers peer support and information over the phone to parents, siblings, or other caregivers. It is free and volunteer-based.
Family Quality of Life Survey
This is a survey that addresses family quality of life and helps families or family support personnel identifiy family strengths and priorities for support.
Family Support Advisory Council
A Louisiana group that keeps a watchful eye on the delivery of community and family supports.
Learn the Signs. Act Early.
This initiative helps parents, doctors, and everyone notice signs of disability in babies and very young children.
National Association for Down Syndrome
This organization is for individuals with down sydrome and their families.
National Dissemination Center for Children with Disabilities
This is a national web site with a lot of information about children and youth with disabilities.
National Fragile X Foundation
This is an organization for people interested in Fragile X syndrome.
Parent to Parent -- A National Network of Parent Support Programs
Parent to Parent programs provide information and support to parents/caregivers of family members with disabilities.
S.M.I.L.E. on Down Syndrome Parent Network
An organization in Indiana that provides information and support to the families of children who have Down syndrome. S.M.I.L.E. also serves small parts of Kentucky and Illinois.
The Children's Link
The Children's Link provides individual guidance and information to families who have a special needs child.
The Fathers Network
A website that provides current information and resources to assist all families and care providers involved in the lives of children with special needs, especially fathers.
Vanderbilt Autism Clinic
A university center that studies the needs of children who have autism spectrum disorder. It provides some services and is located in Tennessee.
Web Site for T.A. Alliance for Parent Centers
A website with information about all of the Parent Training and Information Centers in the United States
Online Forums
DownSyndrome.com
This website gives parents who have a child with Down syndrome and others a place to share thoughts and make friends.
Kids Together, Inc.
Kids Together, Inc. is a 501(c)3 non-profit dedicated to the inclusion of children and adults with disabilities. They have a valuable newsletter/listserv with information for parents and self-advocates.
Other
Family Life Cycle Families of Individuals with Developmental Disabilities
This PowerPoint presentation talks about the stages that families go through with a family member who has disabilities.
Pip Squeakers Baby Squeaky Shoes
Baby squeaky shoes that alert parents and encourages first steps.
People Who Can Help
David Wetherow
Facilitation and training in PATH, person-centered planning, self-determination and community living.


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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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