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This department has information about training a variety of health care providers (physicians, nurses, psychiatrists, personal care attendants, etc.) about persons with developmental disabilities.

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Managed by: Beth Fondell of Institute on Community Integration, University of Minnesota

Product Categories
Books, Publications & Reports (printed and/or online) (61 Products)
Electronic Media (52 Products)
Organizations, Programs, and Projects (19 Products)
Other (6 Products)

Books, Publications & Reports (printed and/or online)

	2001 Exceptional Parent Resource Guide This resource guide contains more than 2000 information sources on: different disabilities; parent support, and more....
	A Practical Guide to Assessing Medical Issues Associated with Behaviorial/Psychiatric Problems in Persons with Intellectual Disabilities - 2011 This book is about the possible interaction between medication and behavior problems.
	Access to Health Care: People with Developmental Disabilities This is a training curriculum for healthcare professionals. It includes a DVD and a training manual.
	Access to Medical Care: Adults with Physical Disabilities This is a training curriculum for healthcare professionals. It includes a DVD and a training manual.
	Aging and Developmental Disability: Current Research, Programming, and Practice Implications A textbook about aging issues in persons with developmental disabilities
	Aging with a Disability: What the Clinician Needs to Know This book is about changes that happen as a person with a disability gets older, ways to deal with those changes, and ways to support people as they age.
	Aging with a Physical Disability (An issue of the series Physical Medicine and Rehabilitation Clinics) This is a special issue about aging with different types of disabilities. It is part of a reference series of books.
	Alphabet Kids - From ADD to Zellweger Syndrome A Guide to Developmental, Neurobiological and Psychological Disorders for Parents and Professionals 2nd edition This book explains 70 different disability labels sometimes given to children.
	Anxiety and Depression in People with Intellectual Disabilities: Intervention strategies This is an academic handbook best suited to mental health professionals or graduate level students.
	Asperger's Disorder This book about Asperger's syndrome is written for mental health professionals.
	Being a Healthy Woman This book is about staying healthy. It is easy to read for women with intellectual disabilities.
	Building Capacity among Health Professionals to Promote Health Advocacy among Persons with Developmental Disabilities This training program helps doctors learn about the health needs of people with disabilities.
	Caring for the Physical and Mental Health of People with Learning Disabilities This book explains health issues common to people with intellectual/developmental disabilities.
	Children and Youth Assisted by Medical Technology in Educational Settings: Guidelines for Care A set of guidelines for nurses and others in school settings that support children with medical needs.
	Closing the Gap: A National Blueprint to Improve the Health of Persons with Mental Retardation A report on the healthcare status of Americans with intellectual disabilities (formerly mental retardation) and a national plan to improve access to healthcare for this group of people.
	Conflicting Beliefs (Case Study) This case study addresses ethical issues surrounding end-of-life care for people with disabilities. It is available online and can be used to train health care providers.
	Demystifying Syndromes This book serves as a practical summary of some of the common syndromes related to developmental disabilities for professionals and students in the field.
	Extra Measures For People With Mental Retardation This fact sheet gives physicians advice on treating people who have intellectual disabilities.
	FXS and Autism: Similar But Different Clinical Insights into the Similarities and Differences for Diagnosis and Treatment This article is about Fragile X Syndrome and Autism. It talks about how they are alike and different from each other.
	Going to Out-Patients (From the "Books Beyond Words" series) This book uses a story with drawings to explain what it is like to have different medical tests done. It is easy to understand and can be read together with a helper.
	Going to the Doctor (From the "Books Beyond Words" series) This book uses a story with drawings to explain what to expect when visiting the Doctor’s office. It is easy to understand and can be read together with a helper.
	Health Care Transition Guides for Helping Youth Transition from Pediatric to Adult Health Care These guides advise Doctors and parents on helping youth with disabilities transition from pediatric to adult healthcare systems.
	Health Disparities Chart Book on Disabilities and Racial and Ethnic Status in the United States This report compares the health status of people with disabilities to that of people of racial and ethnic minority status.
	Healthy Times A medical newsletter for doctors, nurses and caregivers of persons with developmental disabilities. It is published twice a year.
	Intellectual and Developmental Disabilities Nursing: Scope and Standards of Practice A book for nurses to help them provide safe and effective care for people with developmental disabilities at all levels of care.
	Intellectual Disability : A Guide For Families And Professionals This book explains many things about intellectual disabilities.
	Intellectual Disability and Ill Health: A Review of the Evidence This textbook is about some health problems that go untreated in persons with intellectual disabilities.
	Intellectual Disability and Mental Health: A Training Manual in Dual Diagnosis This book is about treatment of people with dual diagnosis.
	Intellectual Disability Mental Health First Aid Manual 2nd edition This booklet teaches how to respond to mental health issues in people who have intellectual disabilities
	Intellectual Disability Psychiatry: A practical handbook This book explains mental health problems as they occur in people with intellectual disabilities.
	Ireland's National Best Practice Guidelines for Informing Families of Their Child's Disability These guide physicians when telling parents that their newborn baby may have disabilities. The guidelines can be viewed on web pages or downloaded as a PDF file.
	Let's Talk about Health: Health Screening and Risk-Reduction for Breast, Prostate and Colon Cancer Booklets to teach individuals with intellectual disabilities and their caregivers about screening and risk-reduction of breast, prostate and colon cancer.
	Massachusetts Department of Developmental Disabilities “Health Promotion and Coordination Initiative” Formulates clear standards and provides tools for establishing effective and consistent health, clinical and behavioral supports for persons with intellectual disabilities.
	Medical Care for Children and Adults with Developmental Disabilities, Second Edition This book covers medical issues as they occur in people with disabilities.
	Mental health fact sheet This fact sheet is about noticing mental health challenges in people who have ntellectual disabilities.
	Mental Health in Intellectual Disabilities: A reader (4th Edition) This academic book from the United Kingdom is about mental health problems as they appear in people who have intellectual disabilities.
	National Caregiver Training Program This training teaches people how to provide personal care. There are many units that have curriculum guides and DVDs.
	Nursing Care for Individuals with Intellectual and Developmental Disabilities A book for nurses who care for people with intellectual and developmental disabilities. It contains the latest research information to help nurses provide the best care possible.
	Nursing Care for Individuals with Intellectual and Developmental Disabilities: An Integrated Approach This book is about provision of quality health care to people with intellectual disabilities.
	Partners in Healthcare This booklet is about making sure people with disabilities get the healthcare they need. It explains the proper roles of both doctor and patient.
	People Planning Ahead: Communicating Healthcare and End-of-Life Wishes This workbook helps caregivers support someone through end of life issues.
	People with Disabilities as a Health Disparities Population: The Case of Sexual and Reproductive Health Disparities. This article is about the barriers that prevent people with disabilities from receiving the healthcare they need. It also suggests steps to eliminate each.
	pleasure ABLE Sexual Device Manual for Persons with Disabilities This manual explains devices that people with physical disabilities can use when having sex. It was created by occupational therapists.
	Practical Oral Care for People With Developmental Disabilities This is a series of booklets about dental care and people with disabilities. They are written for dentists.
	Providing Health Care For Individuals With Intellectual Disability and Mental Health Conditions in Rural Settings This book is about providing medical and mental health services for people with dual diagnosis who live in rural areas.
	Psychiatry of Intellectual Disability: A Practical Manual This book is written for practitioners.
	Psychological Therapies for Adults with Intellectual Disabilities This book is about providing mental health therapy to people with intellectual disabilities.
	Soft Cover Training Handbook of Mental Disorders in Individuals with ID This academic book is about people who have mental illness and intellectual disabilities.
	Supporting People During Hospitalization Practical information to help staff support individuals with disabilities throughout and after hospitalization. It gives practical advice for setting up effective communication systems with hospitals, from admission through discharge planning.
	Supporting Women: Information and resources for General Practitioners supporting women with intellectual disabilities to manage their menstruation This booklet is written for doctors who are treating women with intellectual disabilities.
	The Managed Health Care Curriculum: Supporting People with Disabilities to Utilize Managed Health Care An active training curriculum for direct support staff, people with disabilities, and families relating to a person's health.
	The Physician's Guide to Caring for Children with Disabilities and Chronic Conditions This resource gives medical staff the information they need to provide the best care to patients.
	The Route to Success in End of Life Care - Achieving Quality for People with Learning Disabilities This guide is about end of life care and people who have intellectual disabilities.
	The Spirit Catches You and You Fall Down A book about the encounter between a Hmong family and the American medical community over a child with seizures. The book deals with some fundamental issues surrounding scientific progress, cultural traditions and beliefs, and humanity.
	Training Handbook of Mental Disorders in Individuals with ID This book is about treating mental health problems in people with intellectual disabilities.
	Understanding Fragile X Syndrome A Guide for Families and Professionals This book is about Fragile X Syndrome.
	Use of Emergency Departments Among Working Age Adults with Disabilities: A Problem of Access and Service Needs This research article is about the large number of emergency room visits made by people with disabilities.
	When Down Syndrome and Autism Intersect: A Guide to DS-ASD for Parents and Professionals This book is about people have both Down Syndrome and Autism.
	Women with Intellectual Disability This is a set of overhead slides. They are intended for doctors and explains considerations in doing exams, especially Pap tests.
	Working with Parents of a Newly Diagnosed Child with an Autism Spectrum Disorder A Guide for Professionals This book is written for professionals. It is about developing positive and supportive relationships.
	Working with people with intellectual disabilities in healthcare settings This fact sheet explains what intellectual disabilities are and provides tips for healthcare professionals.

Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)

	A Statement of Common Principles on Life-Sustaining Care and Treatment of People with Disabilities This is a statement of principles from Syracuse University's Center on Human Policy. It lists principles about life-sustaining care for people with disabilities.
	Access to Health Care: People with Developmental Disabilities This is a training curriculum for healthcare professionals. It includes a DVD and a training manual.
	Access to Medical Care: Adults with Physical Disabilities This is a training curriculum for healthcare professionals. It includes a DVD and a training manual.
	Active Treatment of Dementia Associated with Down Syndrome This is a CD with information about aging persons who have Down Syndrome,
	An Integrated Model of Psychotherapy for Teens & Adults with Asperger Syndrome This CD is about counseling people with Asperger Syndrome.
	Anxiety Disorders and Developmental Disabilities II This DVD tells the stories of people who have intellectual and psychiatric disorders.
	Asperger's Disorder This book about Asperger's syndrome is written for mental health professionals.
	Carrie Case This web-based training teaches health care providers the best ways to help wommen who have disabilities.
	Closing the Gap: A National Blueprint to Improve the Health of Persons with Mental Retardation A report on the healthcare status of Americans with intellectual disabilities (formerly mental retardation) and a national plan to improve access to healthcare for this group of people.
	Community Based Treatment Interventions For People With Dual Diagnosis This DVD is about treatment options for people with dual diagnosis.
	Comprehensive Treatment Approaches To Anxiety Disorders This is a DVD about anxiety disorders when they appear in people who have intellectual disabilities.
	Consumer Direction in Personal Assistance, Home Care Training Training for Personal Assistants supporting persons who are disabled or disabled/elderly and direct their own care.
	Cultural & Linguistic Competence: Implications for Services & Supports for Individuals with DD This CD is about delivery of culturally sensitive services to people who have both intellectual disabilities and mental health diagnoses.
	Diagnostic Dilemmas This DVD is about how hard it can be to identify mental health problems in people who have an intellectual disability.
	Differential Diagnosis & Treatment of Psychotic Symptoms in Individuals with ID This CD has training for therapists.
	Disability and Health Information for Health Care Providers This web site has information about providing health care to people with disabiliities.
	Dual Diagnosis in People with Asperger's and High Functioning Autism The CD is about dual diagnosis involving mental health issues in people who have autism.
	Dual Diagnosis: Present and Future Directions This DVD is about dual diagnosis.
	Epilepsy: Having A Life This film is about epilepsy.
	Extra Measures For People With Mental Retardation This fact sheet gives physicians advice on treating people who have intellectual disabilities.
	Falls and People with Intellectual & Developmental Disabilities CD This is a training tool for DSPs. It is intended to reduce the number of falls for adults with developmental disabilities.
	Health Care Access & People with Disabilities This website is about improving the health care access and wellness of people with disabilities.
	Health Disparities Chart Book on Disabilities and Racial and Ethnic Status in the United States This report compares the health status of people with disabilities to that of people of racial and ethnic minority status.
	HIPAA This DVD describes HIPAA guidelines and teaches home care providers about the importance of maintaining confidentiality in a variety of settings.
	Home Health Aide/Personal Care Assistant This DVD explores the skills and special personality traits needed for the work of the home health aide and personal care assistant.
	Informed Consent for Healthcare This program helps people in making medical decisions. They share information for self-advocates, family members, support staff, and physicians.
	Intellectual Disability, Pervasive Developmental Disorders and Intersectorality Website A partnership in Canada between researchers and service providers to people with disabilities. These groups work together to learn new ideas about providing better services. They then offer training and write papers about the things they have learned.
	Joshua's Road to Self Determination (video) A 23 minute video Joshua Golden's life and moving toward Self-determination: A life and home of his own.
	Learn the Signs. Act Early. This initiative helps parents, doctors, and everyone notice signs of disability in babies and very young children.
	Managing Psychiatric Behavioral Crises in Persons with Dual Diagnoses This CD is about helping people with dual diagnosis through times of crisis.
	Massachusetts Department of Developmental Disabilities “Health Promotion and Coordination Initiative” Formulates clear standards and provides tools for establishing effective and consistent health, clinical and behavioral supports for persons with intellectual disabilities.
	Mental health fact sheet This fact sheet is about noticing mental health challenges in people who have ntellectual disabilities.
	Microtraining DVDs (for therapists) These DVDs teach therapists the best ways to help people who have disabilities. Topics include cultural diversity, sexuality, and disability etiquette.
	National Caregiver Training Program This training teaches people how to provide personal care. There are many units that have curriculum guides and DVDs.
	Normal and Pathological Anxiety in Intellectual Disabilities This CD is about anxiety in people with intellectual disabilities,
	Open the Door, Get 'Em A Locker. Educating Nursing Students with Disabilities This short film is about Victoria, a Registered Hurse who is also a wheelchair-user. The film tells about her experiences as a nursing student and graduation.
	Overview of Dual Diagnosis. Current Practice and Therapeutic Relationships This CD is about what truly helps people who have intellectual and mental health disabilities.
	Patient-Centered Care Improvement Guide An online guide to help medical providers become more "patient-centered." The ideas are useful to those in the disability field.
	pleasure ABLE Sexual Device Manual for Persons with Disabilities This manual explains devices that people with physical disabilities can use when having sex. It was created by occupational therapists.
	Positioning, Turning and Transferring This video(DVD)teaches staff some basic principles of body mechanics, positioning techniques and guidelines, as well as the importance of dignity and respect. It covers privacy, and maintaining a sense of control for the person with the disability.
	Practical Group Counseling Issues with People who Are Dually Diagnosed This DVD is about counseling people who have both intellectual and mental health disabilities.
	Pros and Cons of Antipsychotic Treatment This DVD is about the pros and cons of taking antipsychotic medication.
	Reproductive Health Care for Women with Disabilities This is a powerpoint presentation on health care for women with disabilities. It is useful for doctors and health care professionals, and for women with disabilities.
	Reproductive Health Care for Women with Disabilities This is a PowerPoint presentation with information on providing healthcare for women with disabilities.
	S.M.I.L.E. on Down Syndrome Parent Network An organization in Indiana that provides information and support to the families of children who have Down syndrome. S.M.I.L.E. also serves small parts of Kentucky and Illinois.
	SB University (SBU) A website with online training about important topics in the Spina Bifida Community.
	Sexuality and Reproductive Health--Pregnancy and Delivery A webpage about how women with disabilities and their doctors need to work together through pregnancy and childbirth.
	Sharing Sensitive Information With Families This DVD helps professionals learn how to deliver sensitive information to parents.
	Understanding and Responding to Persons with Personality Disorders This CD explains personality disorders.
	Update on Psychotropics and Elders with ID This CD is about perhaps not giving more medicine to older persons with intellectual disabilities along with changes in behavior.
	What is Bipolar Illness Anyway? Level: Intermediate This CD is about bipolar disorder.
	Working with people with intellectual disabilities in healthcare settings This fact sheet explains what intellectual disabilities are and provides tips for healthcare professionals.

Organizations, Programs, and Projects

	Abstracts from the Growing Older with a Disability (GOWD) Conference This conference brought together many scholars in Toronto, Canada. They discussed many topics that touched on all disability groups. All of the information is preserved on a website.
	Center for Disability Issues and the Health Professions A center at Western University of Health Sciences in Pomona, California. Its purpose is to enhance the education of health professionals. Also to improve access for people with disabilities to health, health education and health care services.
	Denver Adult Down Syndrome Clinic This clinic is for people who have Down syndrome and live in Colorado. It provides medical care, as well as social and wellness support.
	Developmental Disabilities Online Online Coursework, Certificate of Completion in DD, and Associate of Science degree for direct support and other professionals.
	Disability and Health Information for Health Care Providers This web site has information about providing health care to people with disabiliities.
	Health Care Access & People with Disabilities This website is about improving the health care access and wellness of people with disabilities.
	Healthcare Stories This initiative is trying to make health care better for people with disabilities. The method is to share powerful stories.
	Informed Consent for Healthcare This program helps people in making medical decisions. They share information for self-advocates, family members, support staff, and physicians.
	Intellectual Disability, Pervasive Developmental Disorders and Intersectorality Website A partnership in Canada between researchers and service providers to people with disabilities. These groups work together to learn new ideas about providing better services. They then offer training and write papers about the things they have learned.
	Last Passages: Sharing Information and Promising Practices to Enhance End-of-Life Care for People with Developmental Disabilities A project with mterial for caregivers to persons with developmental disabilities who are very ill, or near the end of life.
	Learn the Signs. Act Early. This initiative helps parents, doctors, and everyone notice signs of disability in babies and very young children.
	Mental health fact sheet This fact sheet is about noticing mental health challenges in people who have ntellectual disabilities.
	Microtraining DVDs (for therapists) These DVDs teach therapists the best ways to help people who have disabilities. Topics include cultural diversity, sexuality, and disability etiquette.
	S.M.I.L.E. on Down Syndrome Parent Network An organization in Indiana that provides information and support to the families of children who have Down syndrome. S.M.I.L.E. also serves small parts of Kentucky and Illinois.
	SB University (SBU) A website with online training about important topics in the Spina Bifida Community.
	Sexuality and Reproductive Health--Pregnancy and Delivery A webpage about how women with disabilities and their doctors need to work together through pregnancy and childbirth.
	Supports Intensity Scale An assessment tool that evaluates practical support requirements of a person with an intellectual disability.
	Top Ten Things to Remember about Individuals with ID and MH Disorders This CD is about diagnosing mental health problems in people with intellectual disabilities.
	Working with people with intellectual disabilities in healthcare settings This fact sheet explains what intellectual disabilities are and provides tips for healthcare professionals.

Other

	Beth Marks, PhD, RN Beth Marks is Associate Director for Research in the Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD),University of Illinois at Chicago(UIC),President of the National Organization of Nurses with Disabilities
	Building Capacity among Health Professionals to Promote Health Advocacy among Persons with Developmental Disabilities This training program helps doctors learn about the health needs of people with disabilities.
	Developmental Disabilities Online Online Coursework, Certificate of Completion in DD, and Associate of Science degree for direct support and other professionals.
	Joan Guthrie Medlen, MEd, RD Joan Guthrie Medlen is a registered dietitian with an interest in promoting healthful, quality lives for people with IDD.
	Massachusetts Department of Developmental Services Adult Screening Recommendations 2012 This is a list of tests, shots, and screenings that adults need from their doctor to stay healthy. This also tells when an adult needs each test. Examples include cancer screenings, flu shots, and tests for diabetes.
	Personal Care Attendant Training Program A 40-hour curriculum that teaches very important care, communication and behavioral skills. Includes 15 DVSs and 21 copies of 3 different textbooks. Details available at www.medifecta.com

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	This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu. ©2008 by the Regents of the University of Minnesota. The University of Minnesota is an equal opportunity educator and employer. Online Privacy Policy