 | ‘My Thinker’s Not Working’ A National Strategy for Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports
This report is about dementia and people with intellectual disabilities. It provides a national action plan. |
| A Guide to Building Community Membership for Older Adults with Disabilities
This spiral-bound 104 page manual provides practical steps and strategies toward helping older adults with disabilities get connected with their communities.
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| A Practical Guide for Health Management of Aging Adults with Mental Retardation
A book providing an outline of physical, and mental health issues common in older adults with developmental disabilities. |
| A/DDvantage
This is a newsletter published by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities at the University of Illinois at Chicago. It has articles on issues, research, conferences, books, and other resources.
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| Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities
This paper is about end of life planning for people with intellectual or physical disabilities. |
| Ageing and its Consequences for People with Down’s Syndrome A Guide for Parents and Carers
This booklet talks about aging in people who have Down syndrome. |
| Ageing with a Lifelong Disability A Guide to Practice, Program and Policy Issues for Human Services Professionals
This book is about the aging process for someone with a disability.
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| Aging and Developmental Disabilities: Demographic and Policy Issues Affecting American Families
This is a text of testimony by David Braddock of the Institute on Disability and Human Development, Clearinghouse on Aging and Developmental Disabilities. It was given to the Special Committee on Aging on September 18, 1998. |
| Aging and Developmental Disability: Current Research, Programming, and Practice Implications
A textbook about aging issues in persons with developmental disabilities |
| Aging and Disability: Research and Clinical Perspectives
A text-book discussing many aspects of aging, about both people with disabilities who are aging and aging people who now have disabilities |
| Aging and Down Syndrome A Health and Well-being Guidebook
This handbook is about aging with Down Syndrome. |
| Aging with a Developmental Disability
A paper about the special needs of elders who have developmental disabilities. It was made in Canada |
| Aging with a Disability: What the Clinician Needs to Know
This book is about changes that happen as a person with a disability gets older, ways to deal with those changes, and ways to support people as they age. |
| Aging with a Physical Disability (An issue of the series Physical Medicine and Rehabilitation Clinics)
This is a special issue about aging with different types of disabilities. It is part of a reference series of books. |
| Aging with Cerebral Palsy
This book is about some of the things that may happen as a person with Cerebral Palsy gets older. It is written for people with Cerebral Palsy. |
| Aging with Developmental Disabilities: Women's Health Issues
A fact sheet addressing the most commonly asked questions by women who are aging. Topics include menopause, osteoporosis, heart disease, and how to stay healthy.
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| Aging with Intellectual Disabilities and Later-Life Family Caregiving
This chapter, located in volume seven of an eleven-volume set entitled "Comprehensive Clinical Psychology" looks at caregiving of older adults with intellectual disabilities and how aging affects families, services and supports and future planning. |
| Aging, Mental Retardation and Physical Fitness
This is a fact sheet on what physical fitness is and how it relates to older people with developmental disabilities. |
| Aging: Older Adults and Their Aging Caregivers
A fact sheet from AAIDD. It is about the number of aging people with a disability, and that caregivers are also aging.
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| Caring for the Physical and Mental Health of People with Learning Disabilities
This book explains health issues common to people with intellectual/developmental disabilities. |
| Circles of Support and Mutual Caring
This booklet is for people who know older families, and particularly those where a person with a disability and their older relative are giving essential support to each other. This is often known as ‘mutual caring’. |
| Contemporary Issues in Intellectual Disabilities
This academic book is about many topics affecting people with intellectual disabilities. |
| Down Syndrome Families Aging Together as Life Expectancy Lengthens
This is a web-based article about aging and people who have Down syndrome. As people grow older, it is presenting new challenges for their families. |
| End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities
A book written to help professionals and families with end-of-life care decisions for people with intellectual and developmental disabilities. |
| End-of-life Care: Bridging Disability And Aging With Person Centered Care
A book about end of life care both for people with disabilities and people who are aging. It has real life examples and chapters that are responses to these papers from experts in the field. |
| Facts for Healthy Aging: Exercise to Feel Fit
Four fact sheets for people with disabilities about how they can be healthy as they get older. |
| Family Caregiver Handbook
A guide for family and other unpaid caregivers who care for an adult or senior with disabilities. |
| Five Wishes
Five Wishes is a booklet where you put in writing how you want things handled for you at the end of life. |
| Hearing Changes in Aging People with Mental Retardation
A fact sheet providing answers to frequently asked questions about age-related hearing loss, especially for people with developmental disabilities. |
| Helping People with Developmental Disabilities Mourn: Practical Rituals for Caregivers
This is a book for caregivers to help people with disabilities mourn the death of a loved one. |
| Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities
This magazine is about supporting aging adults with disabilities. The articles are written by and about people with disabilities and their families. There are also articles from community agencies and researchers. |
| In My Shoes
A series of staff training games that create simulations of experiences and environments for consumers, families, co-workers and paid staff. |
| Learning Disabilities and Dementia
This fact sheet talks about dementia and people with intellectual/developmental disabiities. |
| Leisure Works
This program shows people with disabities how to find new leisure activities, and learn new skills. It also helps DSPs. |
| Lessons in Grief and Death: Supporting People with Developmental Disabilities in the Healing Process
A book for helping people with disabilities cope with the loss of someone in their life. |
| Letters of Intent Fact Sheet
A fact sheet about how to create a letter of intent. Letters of intent are most often written by parents to share future hopes for a loved one with a disability. You can download it as a PDF file. |
| Making Choices As We Age: A Peer Training Program
A curriculum for training individuals with disabilities and their co-trainers how to teach other adults with developmental disabilities about choice-making, rights and responsibilities. |
| McCracken Intervention Matrix: Guidelines for Careers to Help Older Adults with Mental Retardation Maintain Optimal Functioning
This curriculum provides an assessment tool that is consistent and comprehensive in nine areas. These include nutrition, motor skills, relationships, communication, and protection. Activities are also provided to help persons maintain functioning. |
| Moving On Without Parents Planning, Transitions and Sources of Support for Middle-Aged and Older Adults with Intellectual Disabilit
This book is about planning for the care of adults with disabilities. |
| Navigating Choice and Change in Later Life: Frameworks for Facilitating Person-Centered Planning
This book is about choosing the living situation you want as you age. |
| Older Adults With Developmental Disabilities (Society and Aging Series)
This is a textbook about aging and developmental disabilities. |
| Older Adults with Developmental Disabilities and their Aging Family Caregivers
A fact sheet that answers common questions about aging with a developmental disability. |
| Older Adults with Developmental Disabilities: Optimizing Choice and Change
textbook about supporting older adults with developmental disabilities |
| People Planning Ahead: Communicating Healthcare and End-of-Life Wishes
This book and CD help caregivers support someone with end of life issues. |
| Person Centered Planning and Communication of End-Of-Life Wishes With People Who Have Developmental Disabilities (Published in the Journal of Religion, Disability and Health: May, 2005)
This paper is about using person-centered planning with people who have disabilities and are nearing the end of their lives. |
| Person-Centered Planning for Later Life: A Curriculum for Adults with Mental Retardation
This curriculum helps those with intellectual disabilities to actively plan for their later years. |
| Psychiatric Problems in Older Persons with Developmental Disabilities
Book describing psychiatric problems in people with developmental disabilities as they age. |
| Quality in Practice: End of Life Issues
A resource guide that gives suggestions on how organizations can promote and maintain community participation for people with disabilities in later life and provide end-of-life support |
| Simple Answers to Difficult Healthcare Questions - Choice
This book helps people talk with doctors and nurses and make choices about health and medical care. There is information about planning ahead for the end-of-life. |
| The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities
This product gives families information about the future legal and financial issues for their adult relative. |
| The Geese and the Peanut Butter Chocolate Ice Cream
This book helps persons with disabilities and people who support them deal with death, loss and grief. |
| The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability
This article is about bringing together the systems that support people with disabilities with those that support people who are aging. |
| Thinking Ahead: My Way, My Choice, My Life at the End
A workbook to assist people in making decisions about the end of their life. There are also three videos about the guide you can watch online. |
| What Should We Do for Jay? The Edges of Life and Cognitive Disability
This article asks how and on what grounds you should make end-of-life-decisions for a person with intellectual disability. |
| Women with Disabilities Aging Well
This book is about women with developmental disabilities from around the world who handle the process of aging successfully. |
| ‘My Thinker’s Not Working’ A National Strategy for Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports
This report is about dementia and people with intellectual disabilities. It provides a national action plan. |
| A Guide to Being A Companion Homemaker: Roles & Responsibilities DVD
This DVD is about providing services to people in their homes. It focuses on the needs of older persons. |
| Active Treatment of Dementia Associated with Down Syndrome
This is a CD with information about aging persons who have Down Syndrome, |
| Addressing Cognitive and Functional Decline
This CD is about aging with intellectual disability. |
| Aging and Disability Website
This website has information about aging as it affects people with intellectual disabilities. |
| Aging with Severe Mental Illness
This CD is about aging for people who have both intellectual and mental illness disabilities. |
| Alzheimer's and Down Syndrome
A short article from the National Down Syndrome Society that provides information about Alzheimer's Disease and Down syndrome. |
| Best Boy
Best Boy is an Academy Award winning video about Philly, a man with an intellectual disability who lived with his parents. The story documents his parents failing health, and Philly's entry into the adult services support system.
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| Bridging the Aging and Developmental Disabilities Service Networks: Challenges and Best Practices
This report discusses how systems can work together to support older adults who have developmental disabilities. |
| Brothers in Giron
A film about two pairs of brothers living in Sweden, above the North Arctic Circle. Both pairs have chosen to live together for most of their lives, but for different reasons.
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| Burt
In this video, a man named Burt gives a chronological history of his life and times, beginning in 1936 when he was 15 years old and living in a large institution. |
| Early Identification of Cognitive Decline in Pers with I/DD
This CD teaches about the early signs of loss of cognitive ability. |
| Future Care Planning: A Roadmap for Family Caregivers
This book guides people through the steps of planning for the future. There are sections for family members and another for people with disabilities. There are many worksheets. |
| Growing Older with A Developmental Disability: Physical and Cognitive Changes And Their Implications
This webpage explains the changes that happen for people with disabilities as they grow older. |
| Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities
This magazine is about supporting aging adults with disabilities. The articles are written by and about people with disabilities and their families. There are also articles from community agencies and researchers. |
| Inclusion of Older Adults Within Everyday Community Life
A video about two older adults with developmental disabilities, who previously lived in institutions, express their desire to become part of everyday American life. |
| Long Term Support for Individuals With Disabilities - Part II: Supporting Adults with Mental Retardation and/or Developmental Disabilities
This brief gives background information on the MR/DD population (now ID/DD) and describes major information and service needs. It also talks about the work of ADRC grantees serving the population and provides resources to aid planning and operations. |
| Office of Disability, Aging, and Long-Term Care Policy (DALTCP)
The Office of Disability, Aging and Long-Term Care Policy (DALTCP) develops, analyzes and coordinates HHS policies and programs for persons with disabilities. |
| Peace of Mind for You and Your Relative with a Disability
The Peace of Mind CD-ROM is based on the best selling book, A Good Life for You and Your Relative with a Disability. It contains stories, testimonials, tips and worksheets to help with future and financial planning. |
| People Planning Ahead: Communicating Healthcare and End-of-Life Wishes
This book and CD help caregivers support someone with end of life issues. |
| People with Disabilities Can Lead Long, Healthy Lives
This web page shows people with disabilities some of the things they can do to live longer, healthier lives. |
| Report on the State of Science on Health Risks and Aging in People with Intellectual Disabilities
This paper summarizes all the research done on aging and people with intellectual disabilities done over the preceeding 15 years. It is written at a complex reading level. |
| Technical Assistance Exchange Issue Briefs
These short documents guide states in planning and implementing programs for older adults with and without disabilities. |
| The Family Life & Disability Series: Answers for people with disabilities & their families
This website has ideas, and information about help available to people with disabilities at each stage in life. It is written to help Native American families. |
| -Update on Dementia and Developmental Disabilities: Emphasis on Down Syndrome
This CD is about dementia and people who have Down syndrome. |
| Update on Psychotropics and Elders with ID
This CD is about perhaps not giving more medicine to older persons with intellectual disabilities along with changes in behavior. |
| Wills, Trusts and Estates
An on-line class to write a will and set up an estate. After you take the class, you'll be ready to meet with your lawyer to do this. Included: how to decide who to leave money to, setting up an account, and choosing who will carry out your wishes. |
