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Facts and Figures
This department has statistics on the status and trends of national and state spending for services for people with developmental disabilities along with residential services, Medicaid programs, employment services, and other topics. These statistics will help in understanding how much is spent and what kinds of services that government dollars are buying. The statistics also will help stakeholders gauge where their state stands in relation to the nation and other states in supporting services and supports for people with developmental disabilities and families.
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Managed by: Angela Novak Amado of Institute on Community Integration, University of Minnesota
Product Categories
Books, Publications & Reports (printed and/or online) (32 Products)
Electronic Media (26 Products)
Organizations, Programs, and Projects (11 Products)
Other (4 Products)
People Who Can Help (2 Products)
Books, Publications & Reports (printed and/or online)
 | "Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children"
This report is about the many barriers faced by parents who have disabilities. It also suggests ways to make things better. | | 2011 Disability Status Report
This report has statistics about people with disabilities around the United States. | | 2012 Annual Disability Statistics Compendium
This report has statistical information about people with disabilities. | | A Comparison of Medicaid Institutional versus Community Expenditures
This is an information bulletin. It compares each state's Medicaid spending, for institutions and for community care. | | A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders
This article is about waiver services for people with some form of autism. | | A Review of Commonly-Used State Employment Measures in Intellectual and Developmental Disability Services
This research brief reviews how to find out about the employment rates of people with intellectual disabilities. | | Across the States 2012: Profiles of Long-Term Services and Supports
A detailed report on the long-term services and supports provided in each state in the United States. | | Aging and Developmental Disabilities: Demographic and Policy Issues Affecting American Families
This is a text of testimony by David Braddock of the Institute on Disability and Human Development, Clearinghouse on Aging and Developmental Disabilities. It was given to the Special Committee on Aging on September 18, 1998. | | Americans With Disabilities: 2010 Report
A report on the demographic information of people with disabilities in the United States in 2010. | | Contemporary Issues in Intellectual Disabilities
This academic book is about many topics affecting people with intellectual disabilities. | | Costs, Cuts, and Consequences: Charting a New Course for Working-Age People with Disabilities
This report asks how money spent at the Federal and state levels is helping working-age people with disabilities move into good jobs.
| | Crime Against People with Disabilities, 2007
A report about people with disabilities as victims of crime. It was written by the United States Department of Justice. You can read it online. | | Disability at the Dawn of the 21st Century and the State of the States (2002)
This book provides a detailed state-by-state analysis of public financial support for persons with MR/DD, mental illness, and physical disabilities. | | Family Support Services in the United States: 2008 (Policy Research Brief)
This brief is about family support Services for people with ID/DD. | | Health Status, Health Care Utilization Patterns, and Health Care (Policy Research Brief)
This Brief reviews the current research to see how the medical needs of people with disabilities are being met by their communities or how their needs could be met. | | How is the Affordable Care Act Leading to Changes in Medicaid Today? State Adoption of Five New Options
This article talks about health reform and changes to Medicaid. | | Implementation of Consumer-Directed Services for Persons With Intellectual Disabilities
A summary of results from a study on the status of consumer-directed services across the United States. The study was conducted in 2006 and 2007. | | Landscape of Literacy and Disability
A book that looks at the relationship between disability and literacy in Canada. The findings in the book are intended to impact disability policy and service development. | | Mini-MAX User’s Guide
A document explaining how to use a research friendly Medicaid database. | | New York State Disability & Employment Status Report
This report is about the employment rates of people with disabilities in New York state. | | NOD/Harris Surveys
Surveys from 2000, 2004 and 2010 on the status of Americans with disabilities and on participation gaps that exist between them and people without disabilities in American life. | | Out of Reach
Out of Reach is a report that compares wages and rents for housing throughout the United States. | | Research on People with MR/DD based on the National Health Interview Survey - Disability Supplements
This web-site has solid, wide ranging information about people with intellectual disabilities (formerly mental retardation) or developmental disabilities that is based on analyzing special census data | | Residential Services for Persons with Developmental Disabilities: Status and Trends (RISP)
This annual report provides information about where people with developmental disabilities live, and how Medicaid dollars are used to pay for those supports. You download it as a large PDF file or make your own shorter reports online. | | StateData: The National Report on Employment Services and Outcomes (2012)
This report explains where people with developmental disabilities work, and the kind of jobs they have. It has information from around the United States, and is updated every year. | | Still in the Shadows with Their Future Uncertain A Report on Family and Individual Needs for Disability Supports (FINDS), 2011
This report summarizes how people with disabilities are faring in the community. It covers schools, jobs, housing, and support for families. | | Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective
This is an AARP document called Insight on the Issues. This issue has research that shows that over time, states that invest in home and community-based services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending. | | The Case for Inclusion
An Analysis of Medicaid for Americans with Intellectual and Developmental Disabilities, by United Cerebral Palsy, details the outcomes of Medicaid spending in creating more inclusive communities in each state. | | The State of Disability in America
A report from the "Life without Limits Project." This project was sponsored by United Cerebral Palsy. It provides a look at how people with disabilities in America are doing today. | | The State of the States in Developmental Disabilities
Nationwide and state-by-state report on services and supports for people with developmental disabilities. Examines revenue, spending, and programmatic trends in each state and the nation.
| | Unfinished Business: Making Employment of People with Disabilities a National Priority
This report from the U.S. Senate is on employment and people with disabilities. | | World Report on Disability
This report looks at the status of people with disabilities around the world. It shows that the number of people with disabilities has grown around the world. |
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
| 2009 Monthly Data Series on the Employment Status of People with a Disability
A website from the United States Bureau of Labor Statistics. It has data from a population survey on the employment status of people with a disability in the U.S. | | A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders
This article is about waiver services for people with some form of autism. | | Across the States 2012: Profiles of Long-Term Services and Supports
A detailed report on the long-term services and supports provided in each state in the United States. | | Adults with learning difficulties in England 2003/04
This is the report of the first national survey of adults with learning disabilities (intellectual disability) in England. It tells us how much more needs to be done if people with Learning Difficulties are to be more included and have a better life.
| | Americans With Disabilities: 2010 Report
A report on the demographic information of people with disabilities in the United States in 2010. | | Changing Priorities: The Federal Budget and Housing Assistance, 1976-2007
This report provides an overview of HUD budget trends from fiscal year 1976 through fiscal year 2006 as measured in inflation-adjusted dollars. | | Disability and Health
This web page is about health and people with disabilities from around the world. | | Disability and Health Data System
An online system that provides a lot of disability statistics in the United States. | | Disability Statistics
Website on disability statistics for the United States | | Family Support Services in the United States (Policy Research Brief)
This brief reports on how well state governments have provided family support services for persons with disabilities. | | Financing Resources for Affordable Housing: A Brief Overview
This document briefly describes several financial resource options to be used for the development of affordable housing. | | GAO Report to Congressional Committees: Business Tax Incentives: Incentive to employ workers with disabilities receive limited use and have an uncertain impact
GAO study finds few businesses take advantage of tax incentives to employ persons with disabilities. | | Health Status, Health Care Utilization Patterns, and Health Care (Policy Research Brief)
This Brief reviews the current research to see how the medical needs of people with disabilities are being met by their communities or how their needs could be met. | | Hud Releases 2005 Median Income Estimates: Housing Info Update # 31
On 3/4/05, HUD issued the estimated Median Family Incomes for FY2005. These income figures are used as the basis for income limits for several HUD programs. | | Medicaid HCBS Waiver Expenditures FY2000 through FY2005
Memorandum and tables which present data on Medicaid 1915(c) Home and Community-Based Services (HCBS) waiver expenditures from Federal Fiscal Years 2000 through 2005. | | Mini-MAX User’s Guide
A document explaining how to use a research friendly Medicaid database. | | N.O.D. Harris Survey (National Organization on Disability Harris Survey of Americans with Disabilities)
The N.O.D. Harris poll summarizes the latest findings on quality of life issues for people with disabilities. | | ODEP Disability Data Resources
This website is a resource page of website links, relating to disability statistics and research centers, put together by the Office of Disability Employment Policy. | | State Health Facts Online
A website with health care coverage availability information for all 50 states. | | StateData.info
This website has charts of state, national, and individual disability data for agencies that provide employment supports. | | Still in the Shadows with Their Future Uncertain A Report on Family and Individual Needs for Disability Supports (FINDS), 2011
This report summarizes how people with disabilities are faring in the community. It covers schools, jobs, housing, and support for families. | | The Case for Inclusion
An Analysis of Medicaid for Americans with Intellectual and Developmental Disabilities, by United Cerebral Palsy, details the outcomes of Medicaid spending in creating more inclusive communities in each state. | | The High Cost of Capping Federal Medicaid Funding
A fact sheet from AARP that talks about the impact of capping the amount money the federal government spends on Medicaid. | | The SCAN Foundation National Fact Sheets
These fact sheets provide basic information on the who, what, where, when, why, and how of long‐term care. | | The State of the States in Developmental Disabilities
Nationwide and state-by-state report on services and supports for people with developmental disabilities. Examines revenue, spending, and programmatic trends in each state and the nation.
| | THOMAS World Wide Web
THOMAS is a website that offers information and regular updates on Federal legislative issues in the United States. |
Organizations, Programs, and Projects
Other
People Who Can Help
| Celia Feinstein
Dr. Feinstein provides consultation and training at the level of local, state and national practices and policies in the areas of self-determination, leadership development, deinstitutionalization, quality management and waiting lists. She has work... | | Sheryl Larson
Sheryl Larson, Ph.D., is an internationally known expert in the areas of staff recruitment and retention, and workforce development. She is a Research Associate at the Institute on Community Integration and the Research Director for the Research and... |
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