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Facts and Figures
  >>Located in Store(s): Government Office

This department has statistics on the status and trends of national and state spending for services for people with developmental disabilities along with residential services, Medicaid programs, employment services, and other topics. These statistics will help in understanding how much is spent and what kinds of services that government dollars are buying. The statistics also will help stakeholders gauge where their state stands in relation to the nation and other states in supporting services and supports for people with developmental disabilities and families.

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Managed by: Angela Novak Amado (amado003@umn.edu) of Institute on Community Integration, University of Minnesota

Product Categories
Books, Publications & Reports (printed and/or online) (44 Products)
Electronic Media (19 Products)
Organizations, Programs, and Projects (9 Products)
Other (3 Products)
People Who Can Help (1 Products)


Books, Publications & Reports (printed and/or online)
2011 Disability Status Report
This report has statistics about people with disabilities around the United States.
2012 Annual Disability Statistics Compendium
This report has statistical information about people with disabilities.
2012 National Survey on Abuse of People with Disabilities
This report summarizes a national survey about the abuse and crime victimization of children and adults with disabilities in the United States.
2013 Annual Disability Statistics Compendium
This report pools disability statistics published by various federal agencies together in one place.
A Comparison of Medicaid Institutional versus Community Expenditures
This online article examines how states spend their Medicaid money. It shows that in most states people with intellectual disabilities are more likely to live in the community than are people with physical disabilities.
A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders
This research brief is about the use of waivers with people who have some form of autism.
A Review of Commonly-Used State Employment Measures in Intellectual and Developmental Disability Services
This research brief reviews how to find out about the employment rates of people with intellectual disabilities.
Across the States 2012: Profiles of Long-Term Services and Supports
A detailed report on the long-term services and supports provided in each state in the United States. Multiple versions can be downloaded for free as PDF files.
Aging and Developmental Disabilities: Demographic and Policy Issues Affecting American Families
This is a text of testimony by David Braddock of the Institute on Disability and Human Development, Clearinghouse on Aging and Developmental Disabilities. It was given to the Special Committee on Aging on September 18, 1998.
Americans With Disabilities: 2010 Report
A report from the US Census Bureau with demographic information on people with disabilities in the United States.
Atlas of Literacy and Disability
This book has maps of Canada broken into small areas. Each map shows the number of people with disabilities living in each area, as well as the number of those people who cannot read or write.
Costs, Cuts, and Consequences: Charting a New Course for Working-Age People with Disabilities
This report asks how money spent at the Federal and state levels is helping working-age people with disabilities move into good jobs.
Crime Against People with Disabilities, 2009-2014
This report was prepared by the United States Department of Justice. You can download it as a PDF.
Data Sources for Workers with Disabilities
A short document about how to easily find employment data for persons with disabilities in survey reports done by the U.S. Government.
Disability at the Dawn of the 21st Century and the State of the States (2002)
This book provides a detailed state-by-state analysis of public financial support for persons with MR/DD, mental illness, and physical disabilities.
Disability Through the Life Course
This academic book explains the issues people with disabilities face at each stage of their life. It also explains a lot about how this has changed since 1900.
Family Support Services in the United States: 2008 (Policy Research Brief)
This brief is about family support Services for people with ID/DD. You can download it for free as a PDF file.
Health Status, Health Care Utilization Patterns, and Health Care Outcomes of Persons with Intellectual Disabilities: A Review of the Literature (Policy Research Brief)
This Brief reviewed then current research to see how well the medical needs of people with intellectual disabilities were being met across a variety of settings.
How is the Affordable Care Act Leading to Changes in Medicaid Today? State Adoption of Five New Options
This article talks about health reform and changes to Medicaid.
Implementation of Consumer-Directed Services for Persons With Intellectual Disabilities
A summary of results from a study on the status of consumer-directed services across the United States. The study was conducted in 2006 and 2007.
Intellectual Disabilities: Raising Awareness and Combating Stigma - A Global Review
This report is about how people with intellectual disabilities are treated in different parts of the world.
Mini-MAX User’s Guide
This document explains a research-friendly Medicaid database.
More likely to be poor whatever the measures: Persons with disabilities in the U.S.
This scholarly paper examines how disability is related to poverty.
More With Disabilities on the Job
This short article explains that the unemployment rate for people with disabilities went down in February of 2015.
National Snapshot of Adults with Intellectual Disabilities in the Labor Force
This study looked at the employment rates of adults with intellectual disabilities in the United States. It was published in the Journal of Vocational Rehabilitation.
New York State Disability & Employment Status Report
This report is about the employment rates of people with disabilities in New York state.
NOD/Harris Surveys
The National Organization on Disability previously did an extensive survey to learn about the status of people with disabilities across the United States. These are the results of the last survey done in 2010.
Out of Reach
This website compares wages and rents for housing throughout the United States. It tells how much a person needs to earn to afford an apartment.
Priced Out in 2012
This updated study shows that it is very difficult for those receiving SSI to afford rent.
Report on Equality Rights of People with Disabilities
This report explains the quality of life for people with disabilities compared to those without disabilities based on seven dimensions of well-being. It is about people living in Canada.
Research on People with MR/DD based on the National Health Interview Survey - Disability Supplements
This is a series of reports that provide wide ranging information about people with intellectual or developmental disabilities that is based on analyzing special census data.
Residential Services for Persons with Developmental Disabilities: Status and Trends (RISP)
This annual report provides information about where people with developmental disabilities live, and how Medicaid dollars are used to pay for those supports. You download it as a large PDF file or make your own shorter reports online.
Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children
This report is about the many barriers faced by parents who have disabilities. It also suggests ways to make things better.
State Intellectual and Developmental Disability Agencies' Service Trends
A short document reporting data on employment programs for people with intellectual and developmental disabilities in the United States.
StateData: The National Report on Employment Services and Outcomes (2012)
This report explains where people with developmental disabilities work, and the kind of jobs they have. There is also a website where you can generate reports about what is happening in individual states.
Status of Persons with Disabilities and Their Supported Living Needs
This report has a lot of information about people with disabilities who live in the Anantpur region of India.
Still in the Shadows with Their Future Uncertain A Report on Family and Individual Needs for Disability Supports (FINDS), 2011
This 2011 report summarized how people with disabilities were faring in the community. It covers schools, jobs, housing, and support for families.
Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective
This issue brief summarizes research and shows that, over time, states that invest in Home and Community-Based Services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.
The Case for Inclusion
This annual report looks at how well Medicaid spending is doing with creating more inclusive communities. Results are given for each state.
The State of Disability in America
This report reviewed how people with disabilities were faring in five important life areas. It did a nice job describing how we got to where we are today, and the problems that still exist.
The State of the States in Developmental Disabilities
This gives national and state-by-state reports on services and supports for people with intellectual/developmental disabilities. Includes revenue, spending, and programmatic trends in each state and the nation. Available in print and interactive website.
Trends in Employment Outcomes of Young Adults with Intellectual and Developmental Disabilities in Eight States, 2004–2011
This report shows how many young people with intellectual disabilities have a job, how many hours they work, where they work, and how much money they make.
Unfinished Business: Making Employment of People with Disabilities a National Priority
This report from the U.S. Senate is on employment and people with disabilities.
World Report on Disability
This report looks at the status of people with disabilities around the world. It shows that the number of people with disabilities has grown around the world.
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
Adults with learning difficulties in England 2003/04
This is the report of the first national survey of adults with learning disabilities (intellectual disability) in England. It tells us how much more needs to be done if people with Learning Difficulties are to be more included and have a better life.
Caregiving Across the States Interactive Database
The database provides state profiles that cover the demographics and costs related to caregiving for elders and people with disabilities. The organization also provides information on support and advocacy programs for each state.
Changing Priorities: The Federal Budget and Housing Assistance, 1976-2007
This report provides an overview of HUD budget trends from fiscal year 1976 through fiscal year 2006 as measured in inflation-adjusted dollars.
Congress.gov
Congress.gov is a website that offers information and regular updates on Federal legislative issues in the United States.
Disability and Health
This web page is about health and people with disabilities from around the world.
Disability and Health Data System
An online system that provides a lot of disability statistics in the United States.
Disability Statistics
This website has a lot of information about people with disabilities living in the United States.
Employment for People with Disabilities in Poverty: A Need for National Attention
This Policy Research Brief reviews the employment rates of people with intellectual disabilities and how it relates to poverty. It is online and interactive.
Family Support Services in the United States (Policy Research Brief)
This brief reports on how well state governments have provided family support services for persons with disabilities.
Financing Resources for Affordable Housing: A Brief Overview
This document briefly describes several financial resource options to be used for the development of affordable housing.
GAO Report to Congressional Committees: Business Tax Incentives: Incentive to employ workers with disabilities receive limited use and have an uncertain impact
GAO study finds few businesses take advantage of tax incentives to employ persons with disabilities.
Labor Force Statistics from the Current Population Survey: Data on the employment status of people with a disability
This website has data summaries from an ongoing survey of everyone in the United States. It focuses on the employment status of people with a disability, and is updated monthly.
ODEP Disability Data Resources
This webpage has links to several sources of data concerning the status of people with disabilities in the United States.
State Health Facts Online
A website with health care coverage availability information for all 50 states.
StateData.info
This website has charts of state, national, and individual disability data for agencies that provide employment supports.
The High Cost of Capping Federal Medicaid Funding
A fact sheet from AARP that talks about the impact of capping the amount money the federal government spends on Medicaid.
The SCAN Foundation National Fact Sheets
These fact sheets provide basic information on the who, what, where, when, why, and how of long‐term care.
The State of the States in Developmental Disabilities
This gives national and state-by-state reports on services and supports for people with intellectual/developmental disabilities. Includes revenue, spending, and programmatic trends in each state and the nation. Available in print and interactive website.
Understanding Community Poverty, Housing, and Disability
This online report provides information about poverty and people with disabilities. It shows how poverty makes it hard to find a good place to live.
Organizations, Programs, and Projects
Autism and Developmental Disabilities Monitoring (ADDM) Network
This initiative keeps track of how many children have autism spectrum disorders in different parts of the country. It keeps track of other disabilities too.
Changing Priorities: The Federal Budget and Housing Assistance, 1976-2007
This report provides an overview of HUD budget trends from fiscal year 1976 through fiscal year 2006 as measured in inflation-adjusted dollars.
Disability and Health Data System
An online system that provides a lot of disability statistics in the United States.
Employment for People with Disabilities: Little Is Known about the Effectiveness of Fragmented and Overlapping Programs
A report on the United States government programs that support employment for people with disabilities.
Labor Force Statistics from the Current Population Survey: Data on the employment status of people with a disability
This website has data summaries from an ongoing survey of everyone in the United States. It focuses on the employment status of people with a disability, and is updated monthly.
New York State Disability & Employment Status Report
This report is about the employment rates of people with disabilities in New York state.
Priced Out in 2004
Priced out 2004 is the latest in a series of housing publications that offers facts documenting the affordable housing crisis that affects most people with disabilities receiving Supplemental Security Income (SSI).
Research On Disability (researchondisability.org)
This research center explores new disability research and translates it into best practice and resources. They have information on and graphs with employment, health, and demographic statistics.
Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children
This report is about the many barriers faced by parents who have disabilities. It also suggests ways to make things better.
Other
Assessing the Health and Welfare of the HCBS Population
An on-line report about the health of people who receive Medicaid home-and community-based services (HCBS).
Medicaid Home and Community-Based Services Programs: 2009 Data Update
This on-line report presents data on states' efforts to move Medicaid programs from institutional care to home and community based care.
World Report on Disability
This report looks at the status of people with disabilities around the world. It shows that the number of people with disabilities has grown around the world.
People Who Can Help
Celia Feinstein
Dr. Feinstein provides consultation and training at the level of local, state and national practices and policies in the areas of self-determination, leadership development, deinstitutionalization, quality management and waiting lists. She has work...


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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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