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State and Local Initiatives

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Systems Change Shop

This department will include products describing state and local community initiatives aimed at making significant changes to embrace and reflect the principles of person-centered supports. These products might include broad-scale state and local system change/reform initiatives, government program redesign efforts and partnerships among stakeholders to promote person-centered support principles.

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Managed by: Chas Moseley of National Association of State Directors of Developmental Disabilities Services

Product Categories
Books, Publications & Reports (printed and/or online) (25 Products)
Electronic Media (17 Products)
Organizations, Programs, and Projects (25 Products)
Online Forums (1 Products)
Other (6 Products)
People Who Can Help (2 Products)

Books, Publications & Reports (printed and/or online)

	Alaska Service Principles Alaska has nine service principles to assure quality in community services. Funding is tied to these principles for each consumer. If the consumer is not satisfied, funding is not released to an agency. These principles are the foundation of all services.
	Becoming a Person Centered System This report explains a systems change initiative. It begins with training DSPs in Person Centered Planning, and leads to changes in how both agencies and service systems do their work. Full text available as a PDF file.
	Filthy Lucre, Creating Better Value in Long Term Supports A paper that discusses issues of rate-setting and person-centered budgeting in support of self-determination
	Forging a Partnership: Dane County, Wisconsin An overview of systems change occurring in Dane County, Wisconsin designed to promote self-determination.
	Having It Your Way: Understanding State Individual Budgeting Practices: NASDDS Individual Budgeting Study This report summarizes the results of a study of state individual budget development practices conducted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS).
	How is the Affordable Care Act Leading to Changes in Medicaid Today? State Adoption of Five New Options This article talks about health reform and changes to Medicaid.
	Illinois Guardianship Reform Project Illinois Guardianship Reform Project--Final Report
	Independent Evaluation of the Monadnock Self-Determination Project A report on the independent evaluation of the Monadnock Self-Determination Project in New Hampshire. The evaluation reports improved outcomes and reduced costs. The entire report is available on the internet.
	Medicaid Innovations— Meeting Summary Report This report summarizes a 2012 meeting in which state Medcaid directors asked for help from the Feds in managing their costs.
	National Goals for People with Intellectual and Developmental Disabilities This book comes out of a federal conference that was held in 2003. It describes the current knowledge and national goals in areas that affect the lives of people with developmental disabilities in the United States.
	Person-Centered Supports -- How Do States Make Them Work? This is a summary of an evaluation of person-centered practices in four leading states.
	Privatization of Welfare Services: A Review of the Literature This report reviews the shift in welfare and related services from public to private agencies.
	Promising Practices in HCBS: Massachusetts- Recruiting Direct Service Professionals in a Competitive Environment This article describes a collaborative effort in Massachusetts among community agencies to recruit community workers. The Massachusetts Department of Mental Retardation supported and sponsored this effort but community agencies "ran the show."
	Putting Consumers First: Promising Practices for Medicaid Managed Long-Term Services and Supports This report explains how managed care models are being used around the US to fund long-term services. It also offers advice for consumer advocates and state officials.
	Report on the Respectful Language Study S.90 A report on how the state of Vermont changed the wording in their laws to be respectful toward people with disabilities.
	School Days to Pay Days: An Employment Planning Guide for Families of Young Adults with Intellectual Disabilities A booklet for families of young adults with disabilities to guide them on how to go from school to work.
	Self-Directed Employment A book of stories from seven people with disabilities who achieved their goals of getting their dream job.
	Shared Living Guide The guide is about how to help people with developmental disabilities have a home and people to share everyday life with. It is written for states.
	State legislation regarding wages and benefits of home care workers: Thirteen promising practices This report summarises bills from 13 states considered to include promising practices in direct support workforce policy. Many of these bills increase the wages of home and personal care workers.
	State Trends and Innovations in Medicaid Long-Term Services and Supports A short report about how states are using Medicaid funding innovations to allow people to move from institutions to community based settings.
	Support Brokerage Issues in Self-Directed Services A report about issues that can arise in support brokerage. You can read it outline.
	Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective This is an AARP document called Insight on the Issues. This issue has research that shows that over time, states that invest in home and community-based services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.
	The Growth of Managed Long-Term Services and Supports (MLTSS) Programs: A 2012 Update This report summarizes a study of how states are using managed care models to provide long-term care. Several states include people who have ID/DD.
	The Seeing Is Believing Project: A "Lifeline" for Organizational Change in North Carolina A report on a 3‐year program in North Carolina that helped agencies provide more individualized supports for people with disabilities.
	Wyoming DOORS Individualized Budgeted Amount A description of Wyoming's method of assigning individualized budgeted amounts for people with developmental disabilities who participate in waiver programs.

Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)

	ADA Stories – Four Communities Improve Civic Access These stories are on the ADA government website. They are stories of four communities across the United States who have made their programs, services and facilities more accessible for people with disabilities.
	Breaking Shells Breaking Shells is a DVD featuring two people with intellectual disabilities. They show others how to speak up for themselves.
	Bridging the Aging and Developmental Disabilities Service Networks: Challenges and Best Practices This report discusses how systems can work together to support older adults who have developmental disabilities.
	CT Health Jobs CT Health Jobs (www.cthealthjobs.org) is an Internet-based recruiting tool for direct support professionals.
	Fiscal Analysis of Assembly Bill 896. California's Developmental Services System Unification, Finance and Economic Issues Independent economic analysis of California Assembly Bill 896 that proposes to close three large state-operated developmental centers (institutions) in California and transfer people from these centers to community settings.
	Guidelines for Successfully Enrolling People with Disabilities in Managed Care Plans These are for states to use in setting up managed care programs that would include people with disabilities.
	HCBS Clearinghouse for the Community Living Exchange Collaborative This website helps states to share information, tools, and practical resources on how they provide supports to people with disabilities.
	Health Promotion for People with Disabilities: Michigan's Strategic Plan 2008-11 This report explains Michigan’s plan to improve the health of people with disabilities.
	Illinois Life Span Project A central source of information about services available to persons with developmental disabilities in the state of Illinois.
	Making Your Case Internet-based learning program supporting advocacy by and for people with disabilities.
	NYS CARES This site offers a summary of a five-year plan to virtually eliminate the waiting list for residential services for people with developmental disabilities in New York State.
	Ohio County Board of MR/DD Internet Orientation Program A convenient, standardized, flexible, and web-based training is intended for employees of Ohio County Boards of Mental Retardation and Developmental Disabilities (OCBMR/DD) This curriculum is used by staff working in the areas of adult services, case man
	Report on the Respectful Language Study S.90 A report on how the state of Vermont changed the wording in their laws to be respectful toward people with disabilities.
	State Medicaid Integration Tracker This webpage keeps track of the chsnges each state is planning for its Medicaid programs.
	The Growth of Managed Long-Term Services and Supports (MLTSS) Programs: A 2012 Update This report summarizes a study of how states are using managed care models to provide long-term care. Several states include people who have ID/DD.
	The Illinois Direct Support Professional Workforce Initiative Project Web Site This initiative was intended to improve recruitment and retention of Direct Support Professionals in Illinois.
	The State Employment Leadership Network A network of state developmental disability agencies working to improve employment opportunities for people with disabilities.

Organizations, Programs, and Projects

	Advocates Alliance A program in New Mexico to assess, and improve upon the quality of life of people with developmental disabilities and traumatic brain injury.
	Arkansas Disability and Health Program The state of Arkansas is working to approve the health of people with disabilities
	California's Self-Determination Pilots Information concerning self-determination pilot programs underway at four California Regional Centers.
	Community Guides A program to assist families who have a member with disabilities to find supports in their community.
	Disability Rights Network of Pennsylvania A non-profit corporation in Pennsylvania that works with people with disabilities and their families, their organizations, and their advocates to ensure their right to live in their communities with the services they need.
	Having It Your Way: Understanding State Individual Budgeting Practices: NASDDS Individual Budgeting Study This report summarizes the results of a study of state individual budget development practices conducted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS).
	HCBS Clearinghouse for the Community Living Exchange Collaborative This website helps states to share information, tools, and practical resources on how they provide supports to people with disabilities.
	Health Promotion for People with Disabilities: Michigan's Strategic Plan 2008-11 This report explains Michigan’s plan to improve the health of people with disabilities.
	Illinois Association of Microboards and Cooperatives An organization in Illinois that offers self-advocates, families and friends the opportunity to create Microboards and Human Service Cooperatives.
	Illinois Life Span Project A central source of information about services available to persons with developmental disabilities in the state of Illinois.
	Institute for Innovative Transition This agency works to make sure that youth with disabilities are able to move smoothly from high school to adult life. It serves Monroe County in New York state. It has information for agencies, families, and people with developmental disabilities.
	IRIS (Include, Respect, I Self-Direct) This program allows individuals to use public funds to create their own support and service plans.
	Kansans Educating and Empowering Persons with Developmental Disabilities A statewide training program for direct support professionals that addresses supporting personal health and community presence for persons with disabilities.
	Kentucky Consumer Directed Option A program that allows Kentucky Medicaid waiver members to choose who provides their non-medical waiver services. Members can direct all or some of their waiver services.
	MN Region 10 Quality Assurance A person-driven quality assurance process operating in southeastern Minnesota to evaluate services for persons with developmental disabilities.
	Monadnock Developmental Services A pioneering agency in supporting self-determination
	Money Follows the Person Grants A federal program that assists states in helping create more opportunities for the elderly and people with disabilities to move from institutions to the community.
	New York State Developmental Disabilities Planning Council (DDPC) The DD council for New York state. It seeks to improve the lives of people with disabilities in New York in the areas of community involvement, employment, recreation and housing.
	Oregon Council on Developmental Disabilities A council that seeks to increase the independence, productivity, integration and inclusion of people with developmental disabilities in Oregon. It has some unique publications.
	Pennsylvania's Waiting List Reduction Initiative In 1998,Pennsylvania stakeholders developed a solid plan to reduce the state's waiting list for community services. This plan presently is being implemented.
	Person-Centered Agency and System Design Projects A project that that helped agencies and community service systems improve the quality and person-centeredness of the supports they provided.
	State Disability and Health Programs This program helps states do a better job meeting the health needs of people with disabilities. It is offered by the Centers for Disease Control and Prevention.
	The Illinois Direct Support Professional Workforce Initiative Project Web Site This initiative was intended to improve recruitment and retention of Direct Support Professionals in Illinois.
	The Seeing Is Believing Project: A "Lifeline" for Organizational Change in North Carolina A report on a 3‐year program in North Carolina that helped agencies provide more individualized supports for people with disabilities.
	The State Employment Leadership Network A network of state developmental disability agencies working to improve employment opportunities for people with disabilities.

Online Forums

The State Employment Leadership Network
A network of state developmental disability agencies working to improve employment opportunities for people with disabilities.

Other

	A Multi-Year Plan For Pennsylvania's Mental Retardation Service System Pennsylvania's Multi-Year Plan lays out the steps the Commonwealth will take to expand the availability and improve the quality of person-centered supports.
	Alaska Service Principles Alaska has nine service principles to assure quality in community services. Funding is tied to these principles for each consumer. If the consumer is not satisfied, funding is not released to an agency. These principles are the foundation of all services.
	Illinois State Plan Goals & Performance Targets This set of goals and performance targets will guide the 1998-2000 three year state plan of the Illinois Developmental Diabilities Council.
	New Abuse Reporting Procedures Mandated in California A new law that changes the way in which alleged incidents of abuse and deaths involving people with developmental disabilities are reported and investigated.
	The Governor's Waiting List Initiative: A Five Year Plan to Address the Waiting List in the State of Maryland An ambitious 5-year plan to serve individuals and their families on the waiting list for services in Maryland.
	Wyoming DOORS Individualized Budgeted Amount A description of Wyoming's method of assigning individualized budgeted amounts for people with developmental disabilities who participate in waiver programs.

People Who Can Help

	Celia Feinstein Dr. Feinstein provides consultation and training at the level of local, state and national practices and policies in the areas of self-determination, leadership development, deinstitutionalization, quality management and waiting lists. She has work...
	Valerie J. Bradley My primary area of expertise is quality assurance and quality management at the federal, state and provider level. Val is the director of the Human Services Research Institute, which has conducted national and state evaluations and training in a wide...

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	This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu. ©2008 by the Regents of the University of Minnesota. The University of Minnesota is an equal opportunity educator and employer. Online Privacy Policy