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These products show the many ways people with developmental disabilities are taking greater control over their services and their lives.

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Managed by: John Smith (smith144@umn.edu) of Research and Training Center on Community Living

Product Categories
Books, Publications & Reports (printed and/or online) (47 Products)
Electronic Media (17 Products)
Organizations, Programs, and Projects (7 Products)
Other (4 Products)
People Who Can Help (7 Products)

Books, Publications & Reports (printed and/or online)
Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities
This paper is about end of life planning for people with intellectual or physical disabilities. The full report is available online.
Advising Through Self-Determination: An Information Guide for Advisors
This guide was written to help train people to be advisors to people with disabilities.
Attention: This is Your Life! What Do You Want to Do with It?
This workbook helps self-advocates think about decision-making and what they want to do with their lives. It has pictures and easy to understand language. You can download it for free!
Autism All-Stars How We Use Our Autism and Asperger Traits to Shine in Life
This book has personal stories from successful people who have Autism Spectrum Disorder.
Can I Tell You about Autism?
This book explains what it is like to have autism. The first part is written for children, while later chapters are written for adults and explain how they can help.
Charting the Life Course: A Guide for Individuals, Families, and Professionals
This booklet has important questions for people with disabilities to ask at different points in their life. They start at infancy and go through end-of-life and cover many topics.
Community conversations with people with developmental disabilities in California
This booklet explains the choices people with disabilities have in life, and the choices they would like to have. It was made from interview with 400 self-advocate who live in California.
Consent Handbook for Self-Advocates and Support Staff
This workbook for self-advocates and support staff provides tools to understand and implement crticial life decisions.
Creating Blue Space: Fostering Innovative Support Practices for People with Developmental Disabilities
This book is about how agencies and systems can best provide individualized support to people with developmental disabilities.
Critical Issues in Intellectual and Developmental Disabilities: Contemporary Research, Practice, and Policy
This manual explores emerging issues in the fields of intellectual and developmental disabilities in ten areas.
Disabilities Studies Quarterly
This is the first journal in the field of Disability Studies.You can view all articles online for free.
Disabled and Challenged: Reach for Your Dreams!
Terry Scott is a young adult with muscular dystrophy. He writes about living a full life. He gives ideas about practical topics, such as relationships, jobs, and planning for the future.
Facilitated Decision Making Curriculum
This short curriculum helps service coordinators learn how to support people with disabilities in making their own decisions. You can download it for free as a pdf file.
Fact Sheet: Summary of Self-Determination by Michael Kennedy and Lori Lewin
This summarizes the meaning of self-determination. It was written by two self-advocates.
Family Support, Culture and Disability
This curriculum helps self-advocates and families think about the kind of support that works best for them.
Flourish: People with Disabilities Living Life with Passion
This book has many stories of people with disabilities who have followed their dreams. It also tells the stories of the people who provided support.
Fostering Self-Determination
This booklet has many activities to help people build self-determination and self-advocacy skills. It can be downloaded for free as a PDF file.
Getting to Community: Supporting People with Developmental Disabilities in their Pursuit of the Good Life
This book is about promoting self determination and great lives for people with disabilities.
Hiring and Managing Personal Assistants
This book teaches self-advocates how to hire and manage the DSPs who assist them at home and at work. It can be downloaded as a PDF file.
Illinois Guardianship Reform Project
This report looked at the guardianship system in Illinois and found some problems. The report also suggested ways to fix them.
A newsletter with articles on research, current trends in services, and success stories. Each issue has a specific focus area important to persons with disabilities.
IQ of 63 - So What!: Going Beyond Everybody Else's Expectations
Ben is a man with cerebral palsy. His story shows how important it is for people with disabilities to move beyond labels.
It's My Choice
This self-guided workbook can help people prepare for their person-centered planning meetings. It is available for free as a PDF download.
Jabbers: Dreams N' Goals
Jabbers are a series of games for self-advocates that can be downloaded for free. This one helps people set personal goals and work towards them.
Journal of Intellectual & Developmental Disability
This Australian, academic journal publishes current research and opinions on positive changes to the quality of life for people with intellectual disabilities.
Living Your Own Life With People You Can Count On
This booklet talks about how support teams can help in supporting self-determination.
Making my own choices
This workbook helps people make choices and plan their futures. It is easy to understand.
Minnesota Self-Determination DSP Training Modules
A set of training modules to teach DSPs how to support the self-determination of people with disabilities. These modules are most useful in residential programs and have many activities.
Minnesota Self-Determination Scales
These measure how much self-determination people with disabilities have in their lives. There are separate scales that show the ability of DSPs to support people's self-determination.
Outcomes of the Robert Wood Johnson Foundationís National Initiative on Self-Determination for Persons with Developmental Disabilities
This report summarizes the results from a nationwide program to help people with disabilities and their families take greater control of their services and supports.
Personal Preference Indicators: A Guide for Planning
This tool is a guide for learning about the person's preferences. It is helpful when planning with a person who has a developmental disability, and you can download it for free.
Promoting Self-Determination in Students with Developmental Disabilities
This book tells how to teach people with disabilities to have control over their lives.
Raising Difficult Issues with your Service Provider
This booklet helps consumers begin dialogue and raise issues with their service provider.
Real Life Quality Standards
A book that helps people with disabilities think about how satisfied they are with where they live, what they do with their friends, ect. It can help people plan for the future. You can download it for free.
Research to Practice in Self-Determination Series
These seven magazines explain how self-determination helps people who have intellectual disabilities. They are written at a college level.
Roles Based Planning- Second Edition
This book reviews social role valorization, individual rights, self-determination, and community integration. The author reflects on differences these innovations have made, and presents a model of his own. You can download the entire book as a PDF.
Satisfaction Guide
This guide and DVD helps people with disabilities tell others what is important to them.
Self-Determination and You
This toolkit (workbook and CD) will help people to take control of their lives.
Self-Directed Employment for People with Developmental Disabilities: Issues, Characteristics, and Illustrations
This journal article explains how to help people with disabilities be in control of where they work.
Support Networks A Guide for Self Advocates
This booklet gives self-advocates ideas on how to build a support network.
The Arc's Position Statement on Self -Determination
This explains the Arc's position on the right of people with disabilites to live self-determined lives.
The Child Preference Indicators
This assessment tool helps professionals learn the true preferences and abilities of children. It is completed with lots of input from families.
The International Journal of Disability, Community and Rehabilitation (IJDCR)
This online journal publishes research articles from around the world on the issues of people with disabilities. Anyone can read the articles online for free.
The Robert Wood Johnson (RWJ) Foundation Self Determination Initiative: Final Impact Assessment Report
This is the executive summary of the Human Services Research Institute's evaluation of the Robert Wood Johnson Self Determination initiative. You can download it as a PDF.
Thinking Ahead: My Way, My Choice, My Life at the End
A workbook to assist people in making decisions about the end of their life. There are also three videos about the guide you can watch online.
What is Self-Determination and Why is it Important
This booklet explains what self-determination is using the stories of people with disabilities.
When You're 18 You Are in Charge of Your Health
This book teaches young people with disabilities how to take care of their health care needs. You can download it for free as a PDF.
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
Align Your Dreams with Your Power: How to Succeed With a Disability DVD
This DVD has inspirational stories about people with disabilities.
Balancing Choice and Risk
This DVD is about allowing people to have choices and risks in their lives.
Clay Marzo: Just Add Water
This movie is about a professional surfer who learned he had Asperger's syndrome when he was a teenager. The film is known both for great surfing shots, and a positive look at living with Asperger's syndrome.
Conducting Surveys with Proxies: Evaluating a Standardized Measure to Determine Need
A paper about a new measure that is used to determine the need for a proxy when answering interview questions for a survey.
Directory of Centers for Independent Living
This interactive map helps people find Centers for Independent Living in their state.
It's My Future
An iPad app that helps adults with developmental disabilities to become more self-determined. It also helps people take part in their annual planning meetings.
Leadership Through Personal Change: Think- Plan-Do
This website has guides and videos to help people learn self-advocacy skills.
Living a Good Life: Personal Support Networks
These 6 videos show what happens when people with a disability exercise control over their lives. They also show how personal networks help.
My Life, My Choice
This DVD is about seven adults with disabilities who have taken their futures into their own hands.
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
This webpage is a nice summary of the National Goals Conference that was held in 2015. There are many articles that can be downloaded, and video clips with researchers and persons with disabilities explaining the 10 areas focused on.
National Resource Center for Supported-Decision Making
This website has many resources for someone wanting to learn more about supported-decision making.
Person-Centered Thinking: Supporting Self-Determination
This online video introduces the concepts of self-determination and person-centered planning. It will be helpful for case managers, service providers, and parents of children with disabilities.
Planning for Life: The Role of Direct Support Professionals in Self-Directed Planning
This DVD shows how DSPs can support self-determination and self-direction as they assist people who have disabilities.
Self-Determination and You
This toolkit (workbook and CD) will help people to take control of their lives.
Self-Determination Resource Guide
This webpage has many ideas about ways to help children, youth and adults with disabilities experience self-determination. Anyone can share methods they have come up with.
Self-Determination Tools for Direct Support Staff
This online course helps direct support staff promote self-determination for people with disabilities.
The Incredible 5 Point Scale website
The Incredible 5 Point Scale is an easy-to-use tool people can use to keep track of their own feelings and behavior. This website brings together a lot of information about it.
Organizations, Programs, and Projects
Center for Disability Information and Referral
This Center is a primary source of quality information on disability for residents of Indiana.
Center for Self-Determination
This Center promotes self-determination for people with disabilities. They have both a website and a FaceBook page with a lot of information.
Centre for Disability Studies
The Centre for Disability Studies is a non profit organization in Sydney, Australia that provides information and research on disability.
Collaboration to Promote Self-Determination
This is an advocacy network of 22 organizations. They are working to assure that all people with disabilities have the chance to work and save money.
National Gateway to Self-Determination
This organization shares information and resources about self-determination and people with intellectual disabilities.
Reinventing Quality Conference
This national conference shares the best of what is happening in services for people with disabilities. It happens every two years and attracts a wide variety of audiences.
Selective Mutism Foundation
This organization advocates for those who cannot speak in social settings. This disability makes it difficult to do things like have friends, go to school, and have a job.
David Schwartzkopf: Turning Liabilities into Assets
David is a motivational speaker who speaks personally about overcoming disadvantages and exceeding expectations. He is legally blind and has cerebral palsy.
Hope Leet Dittmeier
Hope has been an advocate with people who have disabilities since 1983. Her speciality is creating customized employment and community living supports that ensure people are vital members of their communities.
John Smith
John's primary interests lie in supporting people with disabilities in the areas of self-advocacy and self-determination. As an evaluator, he is also interested in measuring "Quality" in services and quality assurance.
Microenterprise Options for People with Intellectual and Developmental Disabilities: An Outcome Evaluation
This evaluation looked at outcomes for 27 people with disabilities in Michigan who were self-employed.
People Who Can Help
Angela Amado
Angela Amado has conducted training throughout the U.S., Canada, and also in the Netherlands and Israel on person-centered planning, friendships between people with and without developmental disabilities, community building, self-determination, and per...
Pat Fratangelo
Onondaga Community Living (OCL) is an organization that transitioned from providing group home services to personalized services. We provide personalized suports to adults with developmental disabilities in every type of service that we do, whether it ...
Patti Scott
I am the CEO and co-founder of Neighbours, Inc, an innovative organization providing self-directed supports to people in New Jersey and Pennsylvania. I regularly provide training and consultation on all aspects of organizational change (moving to self...
Robert Dinerstein
I am a law professor at American University, Washington College of Law, where I have taught since 1983. Among other things, I teach in the area of disability law, covering statutes and regulations under Section 504, the ADA, and IDEA, and criminal jus...
Ruthie Beckwith
Ruthie-Marie Beckwith, Ph.D. is the Executive Director of the Tennessee Microboards Association, Inc. a statewide non-governmental organization dedicated to helping people with disabilities self-manage their services and supports. Prior to developing ...
Steve Holmes
I am the director of the Self-Advocacy Associations of New York State, and have been for the last 12 years. I have worked with and for people with developmental disabilities since 1969 when I was an attendant at a state institution--yes it was a horr...
Tom Nerney
Together with 17 other Center for Self-Determination Resource Guides we provide training and technical assistance on all aspects of self-determination including: developing highly personal individual budgets and plans; crafting Medicaid waivers that pr...

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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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