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Self-Determination

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Person Directed Services

These products show the many ways people with developmental disabilities are taking greater control over their services and their lives.

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Managed by: John Smith of Research and Training Center on Community Living

Product Categories
Books, Publications & Reports (printed and/or online) (44 Products)
Electronic Media (29 Products)
Organizations, Programs, and Projects (18 Products)
Other (3 Products)
People Who Can Help (10 Products)

Books, Publications & Reports (printed and/or online)

	A Guide to Consent This guide explores policy, legal, and programmatic implications of topics vital to self-determination.
	A Self-Determined Future with Asperger Syndrome: Solution Focused Approaches This book is about how people with Asperger's syndrome move through their day and have a high quality of life.
	Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities This paper is about end of life planning for people with intellectual or physical disabilities.
	Advising Through Self-Determination: An Information Guide for Advisors This guide was written to help train people to be advisors to people with disabilities.
	Advocacy and Supported Employment for People with Disabilities A guide and workbook for pesons with disabilities who need ideas about ways to find a new job. It is also helpful for service providers who support persons to taking an active role in the job search process.
	Attention: This is Your Life! What Do You Want to Do with It? This 24 page work book uses pictures and language that is easy to understand. It helps people think about decision making and what they want to do with their lives. It covers topics such as: where to live, jobs, support staff and more.
	Charting the Life Course: A Guide for Individuals, Families, and Professionals This booklet has important questions for people with disabilities to ask at different points in their life. The questions are focused on self-determination. They start at infancy and go through end-of-life and cover many topics.
	Community conversations with people with developmental disabilities in California This booklet explains the choices people with disabilities have in life, and the choices they would like to have. It was made from interview with 400 self-advocate who live in California.
	Consent Handbook for Self-Advocates and Support Staff This workbook for self-advocates and support staff provides tools to understand and implement crticial life decisions.
	Disabled and Challenged: Reach for Your Dreams! Terry Scott is a young adult with disabilities. He writes about living a full life. He gives ideas about practical topics, such as relationships, jobs, and planning for the future.
	Fact Sheet: Summary of Self-Determination by Michael Kennedy and Lori Lewin A single page that summarizes the meaning of self-determination.
	Family Support, Self-Determination and Disability, 7th Edition, Trainers' and Participants' Manuals A course to teach people about self-determination, and what it means to people with disabilities and their families.
	Formative Evaluation of the Minnesota Self-Determination Project A report of one state's effort to promote self-determination among individuals and families.
	Getting to Community: Supporting People with Developmental Disabilities in their Pursuit of the Good Life This book is about promoting self determination and great lives for people with disabilities.
	Hiring and Managing Personal Assistants This book teaches self-advocates how to hire and manage the DSPs who assist them at home and at work.
	I Am Much More Than You Think: Plain Talk About Me and Other Things You'll Want to Know An interactive book for children, youth and young adults with disabilities that teaches self-advocacy.
	Illinois Guardianship Reform Project Illinois Guardianship Reform Project--Final Report
	I'm Not a Case and I Don't Want to be Managed - Supporting Self-Determination An article that describes the redefinition of case management in self-determination to support brokerage
	Independent Evaluation of the Monadnock Self-Determination Project A report on the independent evaluation of the Monadnock Self-Determination Project in New Hampshire. The evaluation reports improved outcomes and reduced costs. The entire report is available on the internet.
	Interviewing, Selecting, and Hiring Personal Care Attendants and Employment Specialists Guide for individuals with a disability to take charge of the hiring process for personal care attendants and employment specialists.
	It's My Choice A self-guided workbook on person-centered planning. Available as a PDF download on the Internet.
	Life Landscapes: Saskatchewan advocate stories of success This book tells the stories of people with disabilities. They are from Canada and involved in the self-advocacy movement.
	Living Your Own Life With People You Can Count On A booklet that describes the role of consumer support teams in supporting self-determination.
	Making my own choices This workbook helps people plan their futures. It is easy to understand.
	Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth with Disabilities Transitioning to Adulthood This is a guide for youth with disabilities who are getting ready to find their own place to live. It helps people learn how to manage Personal Assistance Services (PAS).
	Minnesota Self-Determination DSP Training Modules A set of training modules to teach DSPs how to support the self-determination of people with disabilities. These modules are most useful in residential programs and have many activities.
	Minnesota Self-Determination Scales These show the amount of self-determination that people with disabilities have in their lives. There are seperate scales that show the ability of DSPs to support people's self-determination.
	My Health Booklets These eight booklets are easy to read and talk about different aspects of health. They are also available online with narration.
	Outcomes of the Robert Wood Johnson Foundation’s National Initiative on Self-Determination for Persons with Developmental Disabilities A summary of results from a nationwide program to help people with disabilities and their families take greater control of their services and supports.
	Promoting Self-Determination in Students with Developmental Disabilities This book tells how to teach people with disabilities to make choices.
	Raising Difficult Issues with your Service Provider This booklet helps consumers begin dialogue and raise issues with their service provider.
	Real Life Quality Standards A book that helps people with disabilities think about how satisfied they are with things like where they live and what they do with their friends. It can help people plan for the future.
	Research to Practice in Self-Determination Series These seven magazines explain how self-determination helps people who have intellectual disabilities. They are written at a college level.
	Self-Determination and You This toolkit (workbook and CD) will help people to take control of their lives.
	Self-Directed Employment A book of stories from seven people with disabilities who achieved their goals of getting their dream job.
	Support Brokerage Issues in Self-Directed Services A report about issues that can arise in support brokerage. You can read it outline.
	Support Networks A Guide for Self Advocates This booklet gives self-advocates ideas on how to build a support nerwork.
	The Arc Position Statement on Self -Determination This explains the Arc's position on the right of people with disabilites to live self-determined lives.
	The Child Preference Indicators A tool to uncover the true preferences and abilities of children.
	The Robert Wood Johnson (RWJ) Foundation Self Determination Initiative: Final Impact Assessment Report Executive summary of the Human Services Research Institute's evaluation of the Robert Wood Johnson Self Determination initiative.
	The Support Broker Manual - A Resource Guide A Support Broker Manual is a 230 page guide developed for people who serve as Support Brokers for people with disabilities.
	Thinking Ahead: My Way, My Choice, My Life at the End A workbook to assist people in making decisions about the end of their life. There are also three videos about the guide you can watch online.
	Using Individual-Centered Planning for Self-Directed Services A practical guide to planning for consumers, families and service provider organizations containing specific examples and additional resources.
	When You're 18 You Are in Charge of Your Health This book prepares young people with disabilities to take care of their health care needs.

Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)

	A Credo for Support: People First Version A revised edition of a powerful video. It is set to music and offers suggestions for people who support someone with a disability. Read by self-advocates, the suggestions prompt viewers to question common views of disability, professionalism, and support.
	Balancing Choice and Risk This is a DVD for staff training.
	Consumer Roles in Monitoring Community Services for People with Developmental Disabilities Report summarizing Community Monitoring Boards (CMB) for Community Supported Living Arrangements (CSLA)in eight states.
	Declarations of Independence Powerful four-minute DVD features ten self-advocates proclaiming some of their deepest values concerning disability, civil rights and living with dignity.
	Down Under Mystery Tour Down Under Mystery Tour is a unique comedy film starring and co-written by three men with intellectual disabilities.
	Entrepreneurship, Self Employment and People with Disabilities This video tells the story of six people who have multiple disabilities that started their own businesses. It is also available on DVD.
	Fostering Self-Determination A set of activities to help people build self-determination skills.
	In Search of Everyday Life: Self-Determination A video featuring the stories of 3 people with significant disabilities who now practice self-determination. Issues of control, money and support systems are addressed in this look at the lives of Carolyn, Cindy and Richard. Tom Nerney narrates.
	It's My Future An iPad app that helps adults with developmental disabilities to become more self-determined. It also helps people take part in their annual planning meetings.
	Joshua's Road to Self Determination (video) A 23 minute video Joshua Golden's life and moving toward Self-determination: A life and home of his own.
	Leadership Through Personal Change: Think- Plan-Do These are online guides and videos to help people with developmental disabilities live self-determined lives.
	My Health Booklets These eight booklets are easy to read and talk about different aspects of health. They are also available online with narration.
	My Life, My Choice A DVD about seven adults with disabilities who have taken their futures into their own hands. They live in Windsor, Ontario (Canada) and are tired of relying on a limited number of programs and services to direct their lives.
	National Gateway to Self-Determination website A website with information and resources about self-determination and people with intellectual disabilities.
	OPEN FUTURES TRAINING PACKAGE Program package includes DVD and CD-ROM that will introduce you to dozens of people with disabilities who describe how they found their paths to successful careers and why they love their jobs.
	Planning for Life: The Role of Direct Support Professionals in Self-Directed Planning A 30 minute video for Direct Support Professionals about ways to support self-determination and self-direction in their work with people who have disabilities.
	Research Information for Independent Living Consumer-driven database containing independent living (IL) research reviews written in non-researcher language.
	Self-Determination and You This toolkit (workbook and CD) will help people to take control of their lives.
	Self-Determination Is... This is a video/DVD that outlines what self determination is: making your own choices, living the kind of life that you want.
	Self-Determination Resource Guide This webpage has many ideas about ways to help children, youth and adults with disabilities experience self-determination. Anyone can share methods they have come up with.
	Self-Determination Tools for Direct Support Staff This is a program to help direct support staff promote self-determination for people with disabilities. The program includes a DVD of practice exercises and a viewer guide.
	Self-Determination: In Search of An Everday Life This is a video about self-determination as described by self-advocates.
	Self-Management and Self-Determination Strategies:Promoting Independence in the Transition to Adult Life An online course to teach you how to promote transition-aged students' self-management and self-determination skills.
	Supporting Self-Determination A video to teach DSPs how to support the self-determination of the people they assist.
	Taking Charge:Life-Changing Tools for People with Disabilities A new self-taught course, offered on-line, provides the tools for people with disabilities to set and achieve their personal and professional goals.
	The Incredible 5 Point Scale website The Incredible 5 Point Scale is an easy-to-use tool people can use to keep track of their feelings and behavior. This website brings together a lot of information about it.
	West Virginia Fair Shake Network Self-Determination Initiative The Fair Shake Network is a collaborative group of individuals and organizations building a framework of supports and services for individuals with disabilities in West Virginia.
	What is Self-Determination and Why is it Important This booklet explains what self-determination is using the stories of people with disabilities.
	When You're 18 You Are in Charge of Your Health This book prepares young people with disabilities to take care of their health care needs.

Organizations, Programs, and Projects

	California's Self-Determination Pilots Information concerning self-determination pilot programs underway at four California Regional Centers.
	Center for Self-Determination The Center for Self-Determination is a nationwide alliance of people with disabilities, family members and trainers and consultants who work together to promote self-determination for people with disabilities.
	CommunityWorks: Microboards, Cooperatives, Direct Funding Projects Technical assistance in developing, evaluating and 'tuning up' person-centered service structures including microboards, cooperatives and other direct funding initiatives.
	Family Support, Self-Determination and Disability, 7th Edition, Trainers' and Participants' Manuals A course to teach people about self-determination, and what it means to people with disabilities and their families.
	Imagine Enterprises An organization in Texas. It offers person centered services such as employment support, and youth and transition educational seminars.
	My Health Booklets These eight booklets are easy to read and talk about different aspects of health. They are also available online with narration.
	National Coalition on Self-Determination The National Coalition on Self-Determination has been launched
	National Participant Network A membership group of people who are self-directing their services.
	Neighbours Inc. Consulting and Training Services Neighbours Inc. is an innovative non-profit organization created specifically to support people with disabilities and their families in choosing and designing a life for themselves within their local towns and neighborhoods.
	'O Wau Ke Alaka'i' - "I am the leader" A self-determination program in Hawaii.
	Person-Centered Thinking: Supporting Self-Determination A program introducing case managers, service providers, and parents of children with disabilities to the concepts of self-determination and person-centered planning.
	Self-Determination in Kansas An alternative service model designed to facilitate systems change and promote opportunities.
	Tennessee Microboard Association A statewide (Tennessee) initiative developing Microboards and conducting related person-centered planning, training and consultation.
	Texas Microboard Collaboration This program is making it easier for families and others in Texas to start microboards.
	The Karen Gaffney Foundation The Karen Gaffney Foundation works toward the full inclusion of people with Down Syndrome.
	The Vermont Self-Determination Project The Vermont Self-Determination Project makes it possible for individuals, with the support of persons they choose, to take control over their own lives as they envision it.
	This is My Life: Arizona's Response to Consumer Control, Choice, and Responsibility A program that provides peer mentors to persons with developmental disabilities in Arizona.
	Vela Microboard Association A Microboard is formed when a small group of committed family and friends join together with a person with challenges to create a non-profit society. This group addresses the person's planning and support needs in an empowering and customized fashion.

Other

	Hope Leet Dittmeier An advocate of people with disabilities since 1983. In 2006, she created Realizations LLC, an organization that creates custom solutions for adults with disabilities seeking an independent life.
	Microenterprise Options for People with Intellectual and Developmental Disabilities: An Outcome Evaluation Learn the results of a study of people with disabilities who are self-employed.
	Space Race This game teaches people with disabilities about self-determination.

People Who Can Help

	Angela Amado Angela Amado has conducted training throughout the U.S., Canada, and also in the Netherlands and Israel on person-centered planning, friendships between people with and without developmental disabilities, community building, self-determination, and per...
	Bob Jones I am an instructor in the two-year Disability and Community Support program at Red River College College. I have been involved over the last two years with a group of people conducting "retreats" under the general title; "Developing and Sustaining Lead...
	Deborah Reidy Deborah Reidy is President of Reidy Associates, a consulting service which helps to create organizations that contribute to the social good. Reidy Associates specializes in developing leaders, planning and implementing desired futures, and building te...
	Pat Fratangelo Onondaga Community Living (OCL) is an organization that transitioned from providing group home services to personalized services. We provide personalized suports to adults with developmental disabilities in every type of service that we do, whether it ...
	Patti Scott I am the CEO and co-founder of Neighbours, Inc, an innovative organization providing self-directed supports to people in New Jersey and Pennsylvania. I regularly provide training and consultation on all aspects of organizational change (moving to self...
	Ric Crowley MACROW provides consultation in system change technical asistance and training based on the principles of self-determination at the local, conty and state levels.Quality assurance and individual outcomes are priority areas.
	Robert Dinerstein I am a law professor at American University, Washington College of Law, where I have taught since 1983. Among other things, I teach in the area of disability law, covering statutes and regulations under Section 504, the ADA, and IDEA, and criminal jus...
	Ruthie Beckwith Ruthie-Marie Beckwith, Ph.D. is the Executive Director of the Tennessee Microboards Association, Inc. a statewide non-governmental organization dedicated to helping people with disabilities self-manage their services and supports. Prior to developing ...
	Steve Holmes I am the director of the Self-Advocacy Associations of New York State, and have been for the last 12 years. I have worked with and for people with developmental disabilities since 1969 when I was an attendant at a state institution--yes it was a horr...
	Tom Nerney Together with 17 other Center for Self-Determination Resource Guides we provide training and technical assistance on all aspects of self-determination including: developing highly personal individual budgets and plans; crafting Medicaid waivers that pr...

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